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  1. Hutan

    USA: News from Solve ME

    That's great news. The Washington Post article is worth a read. As I understand it, the three senator are just at the stage of introducing a bill - so there is some work to do to get it turned into legislation, although it sounds as though there may be wider support. (?)
  2. Hutan

    Request from Robert Phair re Brainstem connectome diagram

    I have seen more people say that the SGB therapy did not help them than people saying that it did - even just on Phoenix Rising. I've seen one social media post saying that it was a disaster for them, that they are more ill than before and that the treatment has made them highly sensitive to...
  3. Hutan

    Medical Education Webinar: Myalgic Encephalomyelitis - Diagnosis, Management and Current Research

    approx 1 hour 15 minutes The webinar is aimed at doctors Moderated by Dr Teresa Clark - a physician of a 'complex chronic diseases programme' Dr Nina Muirhead Her illness has become less severe, so she is able to work part-time now - good to hear Nina uses the 'complex' descriptor of ME - I do...
  4. Hutan

    JOSPT: Lessons from ME/CFS for Long COVID - 4 part series, 2022, Davenport et al

    A new course presented by Todd Davenport has its own thread here: Lessons from Myalgic Encephalomyelitis for Long Covid, 2022, Davenport et al
  5. Hutan

    Stellate Ganglion Block treatment

    Thanks Mij, it does feel as though this is a treatment in search of a disease.
  6. Hutan

    Stellate Ganglion Block treatment

    There seems to be an industry built around providing SGB treatment to people with PTSD. See for example the Stella network of clinics in Australia. It seems that these treatments are covered by private health insurers. So, what's the evidence of SGB for PTSD? It's actually pretty minimal, and...
  7. Hutan

    Stellate Ganglion Block treatment

    Sorry to hammer home the point. Cort's reporting on that Aleanakian study was inaccurate in terms of it being evidence of efficacy, as was the impression he gives of the safety profile of the treatment. Cort should have done better when it came to reporting on SGB treatment.
  8. Hutan

    Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al

    Stellate Ganglion Block treatment is discussed in more general terms on this thread: Stellate Ganglion Block treatment
  9. Hutan

    Stellate Ganglion Block treatment

    That review is Effectiveness, Safety, and Predictive Potential in Ultrasound-Guided Stellate Ganglion Blockades for the Treatment of Sympathetically Maintained Pain Aleanakian et al 2020 This was not actually a 'review of studies'. They retrospectively analysed the clinical records of 105...
  10. Hutan

    Stellate Ganglion Block treatment

    Not only that @Wonko, but briefly blocking the flight or flight reflex's path to the brain just a couple of times seemed to do the trick for the two women in the case study. I'm presuming the anaesthetic lasts roughly as long as a dental anaesthetic. So, stopping the 'fight or flight reflex'...
  11. Hutan

    Stellate Ganglion Block treatment

    It seems like, another season, and another hyped ME/CFS/Long Covid treatment appears. The first day of Autumn in Australia and I've become aware of Stellate Ganglion Block Treatment. Bye-Bye Fight or Flight? Hello Better Blood Flows? Stellate Ganglion Blocks, Long COVID, and ME/CFS/FM/POTS...
  12. Hutan

    Request from Robert Phair re Brainstem connectome diagram

    So it appears that Robert has stopped working on the tryptophan hypothesis and is now working on the itaconate metabolic trap hypothesis, but has recently also started working on a 'bistabilities in brainstem neural circuits' hypothesis. I'm well disposed towards Robert, I'm glad that he's...
  13. Hutan

    Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al

    If only that were true. It seems I don't need to travel to Alaska, you can get this treatment anywhere Stella Centres across Australia offer the treatment for PTSD "The Einstein of modern anesthesiology". wow What's the bet the evidence base for SGB treatment is studies of open label...
  14. Hutan

    Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al

    There are a couple of things just in the introduction of the paper that could be warning signs that this idea isn't very solid: 1. taking Bruce Patterson's reports at face value 2. Decreased pupil size is called 'miosis'. Meiosis of course is what cells do during sexual reproduction and so...
  15. Hutan

    Request from Robert Phair re Brainstem connectome diagram

    Thanks @SNT Gatchaman. I see that @Milo spotted the paper earlier and made a thread: Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al
  16. Hutan

    Request from Robert Phair re Brainstem connectome diagram

    Is there any good evidence of this? I don't think I've heard about this. I guess I'd ask the same question about it though - is there any good evidence that it helps people with ME/CFS? 'Itaconate metabolic trap' - this seems to be different to the tryptophan kynurenine trap. I don't know...
  17. Hutan

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Posts discussing political involvement in the support of the BPS model have been moved here: Government and Insurance companies - establishing the BPS model
  18. Hutan

    BPS attempts at psychologizing Long Covid

    Hmm, I imagine for all those with Long Covid who recover (the majority) some of the assistance this study mentions could be really helpful - the support for return to work for example. What's the bet that that good support is all rolled up with the psychosomatic overlay, so there's no way to...
  19. Hutan

    Covid-19 vaccination experiences

    I've made a poll about Covid-19 vaccination experiences: Poll - Effect of Covid-19 vaccination on people with ME/CFS
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