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:) I've made a poll here Poll - Effect of Covid-19 vaccination on people with ME/CFS

I've submitted the comment above. It was surprisingly easy to register and submit a comment.

What you have written makes perfect sense to me. To me, it's obvious that much of what is called Long Covid is ME/CFS, triggered by Covid-19. So, a subset of ME/CFS. But a lot of the people developing Long Covid clinical guidelines or funding Long Covid research don't seem to be making that...

From Warren Tate on Radio New Zealand 16 Dec 2021 "And importantly for the ME/CFS group, many of who have been vaccinated, there's been a very large, significant incidence of adverse, serious adverse events from the vaccine for this group, and its pushed many of them back into the most serious...

From Radio New Zealand (first posted by @Ravn on the NZ thread - News from Aotearoa/New Zealand and the Pacific Islands) RNZ - Similarities between long-haul Covid and ME Chronic Fatigue Syndrome (https://www.rnz.co.nz/national/prog...-and-me-chronic-fatigue-syndrome-new-research) RNZ - Is...

36% with symptoms of Long Covid from 423 responses. Gosh, although almost certainly there is a self-selection bias. They say they can't determine a response rate, but they don't even try to estimate the work force size. I thought this was worth commenting on. Here are the relevant questions...

:) Yes, probably partly because of the letter ANZMES sent out, and communications in the media by ANZMES and Professor Tait (quoted earlier in this thread). And then there's this: Rose, there's lots of good commentary earlier in this thread - we are going over the same ground.

Yes, they did put disclaimers on things. But the fact remains that they shared information that increased concerns about the vaccination from influential people in the ME/CFS community. It's possible to do both. That's not what they did - they started campaigning for a fractionated dosing...

Posts on the issue of ANZMES stance on Covid vaccinations have been moved here: New Zealand: Covid-19 vaccinations for people with ME/CFS

The point is, ANZMES did not provide good information. They amplified fear by providing misleading and unbalanced information. Probably worse than the survey was the letter it sent out first, with comments from people including Professor Warren Tait and Dr Ros Vallings. Professor Tait, who is...

That's a remarkable spread of countries noted in the associated organisations of the four authors: Austria, Chile, UK, Germany, Poland, Portugal. It's good to think that that conclusion paragraph above may be being heard in all of those countries.

Regarding the consultation in preparation for the Scottish implementation of the NICE Guideline - we now have a thread where people can record their feedback: MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

Related to the good news about the forthcoming implementation of the NICE Guideline in Scotland, there is a process to gather ideas on how it should be done This advocacy project thread has questions to consider - you can add your thoughts: MEAction Scotland - Stakeholder review of NICE 2021...

Interesting that the lead author comes from Essen in Germany, the same city that the professor who wrote an article downplaying Long Covid comes from: BPS attempts at psychologizing Long Covid I find it a bit hard to work out what this abstract is saying, but there is a welcome linking of...

Fantastic to see that coordinated approach @Joh. What do you think are the chances of this effort bearing fruit?

There is a lot of information relevant to the question of whether Long Covid is a subset of ME/CFS, or overlaps with it in News about Long Covid including its relationship to ME/CFS 2020 to 2021 (thread now closed)

Note from the Moderation Team: Originally this thread was intended to just consider the idea that Long Covid is essentially a form of ME/CFS. It actually morphed into a monster thread with posts about all things Long Covid. Hopefully it will be a useful resource. We've decided to close this...

A new thread for articles and other media about Long Covid in 2022. It follows on from News about Long Covid including its relationship to ME/CFS 2020 to 2021 (which also covers January and February 2022). If an item is strongly expressing the BPS view of Long Covid (e.g. as a somatic...

A number of posts have been moved to A general thread on the PACE trial. A number of posts have been moved to some thread that can accommodate tents and Voltaire and biscuits, yet to be identified. the Members Only thread, A thread of no importance. Post something completely inconsequential...

Having got to the Discussion now, I see that there is more about possible similarities between CFS and people with TB on terms of 'plasma signatures' there. e.g. I want to come back and read more, but just thought I should acknowledge the detail in the Discussion. There may be some consistent...