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And therapists should be making their money off of the perpetrators instead of their victims. It’s backwards, which in itself is a kind of perpetration.

#MEAction Network @MEActNet Today #MEAction's Ben HsuBorger & other #HIV #AIDS #MECFS & #LongCovid activists are at the White House taking action on #WorldAIDSDay. Support their efforts: 1 Email President Biden & Congress 2 Share on social media 3 Livestream 12 pm ET Links...

Health GAP @HealthGAP On #WorldAIDSDay we demand @POTUS @SenSchumer @SpeakerPelosi fund critical global/domestic health measures. Their neglect of chronic pandemics that are disabling & killing millions must stop #FundPandemicPlans https://act.meaction.net/page/46585/act World AIDS Day: Biden...

“POST-EXERTIONAL MALAISE meaning that symptoms get worse after physical or mental effort.”

Much better reporting than usual and I'm particularly grateful Jennifer Ramey said this about sound sensitivity.

The rest of @dave30th's tweets on this thread. :thumbup: Edited to add punctuation.

As all of the stereotypes are already entrenched, this attitude is profoundly disturbing to me because it forces patients to be the ones who have to speak truth to power, and without truth, not only can we not get good research, care and services, there will never be any justice; which we...

https://www.cnn.com/2022/10/17/opinions/long-covid-health-care-smith/index.html

Dr Anthony Fauci: long Covid is an ‘insidious’ public health emergency https://www.theguardian.com/society/2022/oct/17/fauci-interview-long-covid-risk-emergency-response-coronavirus

I would imagine it's because of things like: Decreased income. Financial insecurity. Enforced poverty. Poor housing and homelessness. Having to fight to maintain benefits. Fear of being thrown off of benefits. Not being allowed to marry as it will decrease benefits. Grief from material losses...

Call it data liberation day: Patients can now access all their health records digitally https://www.statnews.com/2022/10/06/health-data-information-blocking-records/

https://www.theguardian.com/society/2022/oct/05/electrifying-book-about-women-with-disabilities-sells-for-six-figures?CMP=Share_iOSApp_Other

CDC: Majority of Adults with Long COVID-19 Report Trouble Performing Daily Activities More than 80% of adults with long COVID say their long-term symptoms have reduced their ability to carry out daily activities...

How Chronic Fatigue Syndrome is helping doctors understand long COVID https://www.wbur.org/onpoint/2022/10/05/how-chronic-fatigue-syndrome-is-helping-doctors-understand-long-covid

I appreciate the blog but we need action as this is the reality for ME/CFS: