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  1. Chandelier

    Aphaeresis/ Apheresis (for removal of microclots)

    Report from an unhappy patient of Dr Jäger on r/cfs: Dr Jäger and her H.E.L.P. apheresis treatment have been positively featured in several bigger german documentaries about Long Covid.
  2. Chandelier

    News from Germany

    I think he means both (self-diagnosed) pwME online and the medical professionals interested in ME/CFS and following Scheibenbogen‘s information without critical thinking. In one scene (at 7:50min) he shows his (unanswered) question via chat during a ME/CFS online training: English translation:
  3. Chandelier

    News from Germany

  4. Chandelier

    News from Germany

    Here’s a complete AI translation of the transcript with timestamps.
  5. Chandelier

    News from Germany

    Heated debate on X after german doctor Hegedüs released this video on ME/CFS:
  6. Chandelier

    News from Scotland

    „The MCAS Clinic“ opened up in Glasgow: https://shop.dicksonchemist.co.uk/the-mcas-clinic/
  7. Chandelier

    Trial Report Patient-reported improvements from use of IMC-2 alone and IMC-2 and Paxlovid® in a Long COVID cohort: a case series, 2026, Pridgen et al

    Preprint, see post #14 for peer-reviewed paper. =================== Full title: Comparison of IMC-2 alone and IMC-2 and Paxlovid® shows substantial short and long-term efficacy in reducing symptoms of Long COVID with combination therapy: a case series...
  8. Chandelier

    Trial By Error: A (Satirical) Field Guide to Conducting Biopsychosocial Research in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), 2025

    https://virology.ws/2025/09/02/trial-by-error-a-satirical-field-guide-to-conducting-biopsychosocial-research-in-chronic-fatigue-syndrome-myalgic-encephalomyelitis-cfs-me/
  9. Chandelier

    Preprint Persistent Immune Dysregulation during Post-Acute Sequelae of COVID-19 … Antibodies Targeting Envelope and Nucleocapsid Proteins, 2025, Kwisa et al.

    Ryan Hisner posted an analysis of this paper on Bluesky: https://skywriter.blue/pages/did:plc:rcxyibhzcrkyqwjow4yddom6/post/3lxt5ne7qqk2v
  10. Chandelier

    Preprint Persistent Immune Dysregulation during Post-Acute Sequelae of COVID-19 … Antibodies Targeting Envelope and Nucleocapsid Proteins, 2025, Kwisa et al.

    Persistent Immune Dysregulation during Post-Acute Sequelae of COVID-19 is Manifested in Antibodies Targeting Envelope and Nucleocapsid Proteins https://www.biorxiv.org/content/10.1101/2025.08.18.670908v1 Abstract Post-Acute Sequelae of SARS-CoV-2 infection (PASC) syndrome or “Long COVID”...
  11. Chandelier

    The Common Cold Is Associated With Protection From SARS-CoV-2 Infections, 2025, Moore et al.

    https://academic.oup.com/jid/advance-article/doi/10.1093/infdis/jiaf374/8230147?login=false Abstract Background Adults and children often respond differently to severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, with adults facing a higher risk of symptomatic and severe...
  12. Chandelier

    News from Germany

    https://www.stuttgarter-nachrichten.de/inhalt.fellbacherin-trotzt-krankheit-ausgebremst-durch-long-covid-mein-leben-ist-hart-aber-ich-habe-keine-wahl.5dc8dda2-e804-4bb3-8b86-5104fafb9ae8.html
  13. Chandelier

    Pediatric Long COVID Is Characterized by Myeloid CCR6 Suppression and Immune Dysregulation

    Tweet/Xcretion by Zdenek Vrozina about this paper: https://threadreaderapp.com/thread/1959450508332032285.html
  14. Chandelier

    DecodeME in the media

    https://www.bbc.com/audio/play/p0lz9jsc DecodeME topic starts @22min, Interview with Professor Chris Ponting starts @ 26min.
  15. Chandelier

    News from Austria and Switzerland

    Yeah, there was this very similar ruling about H.E.L.P.-Apheresis last year: https://www.20min.ch/story/kasse-zahlte-nicht-long-covid-patient-erreicht-wegweisendes-urteil-vor-bundesgericht-103099671
  16. Chandelier

    News from Austria and Switzerland

    https://www.medinside.ch/bundesgericht-css-muss-wirksamkeit-von-post-covid-therapie-erneut-pruefen-20250827
  17. Chandelier

    Germany: Publication of the practical guides for ME/CFS & POTS from the Charité Fatigue Center

    Only medical doctors could access the guides initially. In the meantime the guides have been made available for anyone to download. ME/CFS: Overview page: https://praxisleitfaden.mecfs.de/mecfs PDF link for Gesamtinhalt PDF link for Kurzübersicht Diagnostik POTS: Overview page...
  18. Chandelier

    News from the USA, United States of America

    https://www.cuimc.columbia.edu/news/one-universal-antiviral-rule-them-all AI Summary (English):
  19. Chandelier

    News from Germany

    Larger article in „Apotheken Umschau“, a free bi-weekly magazine that‘s available in apothecaries. According to Wikipedia it reaches around 15 million readers...
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