Search results

https://www.sn.at/panorama/oesterreich/me-cfs-koenigsberger-ludwig-wir-183067384

https://www.moz.de/lokales/bernau/freitod-in-bernau-leben-in-dunkelheit-und-stille-warum-marc-kirch-seinen-suizid-plant-78247849.html AI summary:

https://www.uniklinik-ulm.de/aktuelles/detailansicht/long-covid-und-me-cfs-bei-kindern-versorgung-verbessern-forschung-staerken.html

https://www.abendblatt.de/hamburg/hamburg-nord/article409526110/corona-hamburg-theo-bekommt-trotz-bettlaegerigkeit-pflegegrad-null-er-ist-halbtot.html

I just found this free app for the Apple Watch that measures the heart rate continuously: BeatWatcher You can set your desired threshold and once that is reached it creates a haptic and/or audio feedback.

Longer article on daslamm.ch: https://daslamm.ch/chronisch-krank-und-permanent-angezweifelt/ The article also mentions this study: Health system support among patients with ME/CFS in Switzerland, 2023, Tschopp

Very severe patient story covered in Schwäbische: https://www.schwaebische.de/regional/oberschwaben/ravensburg/in-neuseeland-veraenderte-eine-krankheit-valescas-leben-doch-nicht-nur-die-gesundheit-macht-ihr-zu-schaffen-3830289

Bundesgesundheitsministerium on Instagram asks for your questions. There are already a couple about ME/CFS. Don’t forget to like them:

https://www.meresearch.org.uk/altered-neurometabolite-levels-in-the-brains-of-people-with-me-cfs/ Altered neurometabolite levels in the brains of people with ME/CFS 13 August 2025 Kiana Kothe is a PhD student working with Prof. Zack Shan at the University of the Sunshine Coast on an ME Research...

https://apnews.com/article/tennis-monica-seles-health-myasthenia-gravis-b36b3d132edc3e7eecde19ca759e36ff Tennis star Monica Seles reveals her diagnosis with myasthenia gravis

Austrian newspaper Der Standard: https://www.derstandard.at/story/3000000283013/womoeglich-genetischer-hintergrund-von-mecfs-identifiziert

Interview in the big german newspaper DER SPIEGEL: https://www.spiegel.de/gesundheit/diagnose/me-cfs-eine-psychotherapeutin-erklaert-weshalb-die-krankheit-so-oft-verkannt-wird-a-a65d8a5f-c658-4a12-958c-99ed59fa0583

Article in the german Deutsches Ärzteblatt (paper for medical doctors, requires account): https://www.aerzteblatt.de/news/mecfs-hinweise-auf-genetische-pradisposition-gefunden-a1027752-b2fe-4989-8071-433a15b45788

https://www.meinbezirk.at/muerztal/c-lokales/ein-spendenlauf-fuer-die-krankheit-mecfs_a7516048

https://www.thelancet.com/journals/lanplh/article/PIIS2542-5196(25)00118-4/fulltext Summary Background A rapidly evolving evidence base suggests that exposure to outdoor air pollution is a risk factor for the onset of dementia, with an upturn in publications since 2022. We sought to synthesise...

Thanks for the feedback. Seems like the answers were given in seconds. Here’s what the AI answered in hh:mm:ss: 2 and 3 indicate that one might still be wrong but that’s all the investigation my energy allows for now.

That’s a potential question for AI. Here’s my prompt: https://www.perplexity.ai/search/https-youtu-be-cgumcb-yiaa-wha-XYJN8tpZREOd50lBlvDyrQ#0 And the answer:

I do the exact same thing! And if I should forget it once because the start was already so fun, I‘ll have to pay dearly. Unfortunately, splitting a phone call into 3x 15 mins on the same day doesn’t work neither. Slight side-note but I‘m currently experimenting with social isolation. My current...

I might very well fall into this category, too. However, I feel in this special case where you have to actively decide to stop your (whatever tiny bit of) activity and rest, the target group becomes basically everyone. Of course I‘m speaking from my perspective close to the severe side. There...

I use a very similar technique that I call the 5-10-15 technique. Basically, the main challenge for me to start resting is, well, transitioning into it: Giving up holding onto whatever small activity of life I I‘m taking part in… and let go, sliding into the void of semi-sleep. To ease into this...