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Pretty sure I submitted it but the site was glitching a bit so not 100% sure.

Thank you. Concerned about linking to Wessely directly as I haven't included other references. May just leave as a reference for those in the know

Final draft, I have added a penultimate paragraph @rvallee will perhaps appreciate 'Furthermore, the so-called biopsychosocial approach is always presented as a new and cutting-edge approach to treating people with ME/CFS when it has been the dominant treatment paradigm in this country and...

Hi all, popping back up to ask for feedback on my rapid response, I'm not sure I've struck the right tone but I thought maybe the sort of patient experience perspective will be valuble.

Yes, I had a similar experience with music, was just finding my way back to it when my health declined. Hopefully if we have a finding breakthrough, and/or secure more funding from a proposal like this, some of those who chose another specialisation might be enticed back...

I will say as a small counterpoint that I am sure there will be good young researchers who are dissuaded by these arguments, as I was dissuaded from pursuing a career in music when I was young. Not that aspiring researchers (or musicians) should be shielded from the financial truth of things...

I'm certain I saw Chris Ponting say in an interview last year (I thought with Jennie Jaques or David Tuller but I've scanned the transcripts for both and can't find it) that he can't currently recommend that young researchers under his tutelage come into the field of ME research for precicely...

No it would certainly be a minority. But it's something that occurs to me sometimes when we see the callousness and dishonesty with which they take the deaths of ME patients and use them to further their arguments.

The chilling thing is that statistically, in terms of the numbers of people with ASPD (sociopathy/psychopathy) in high flying fields, there may well be a proportion of these researchers who know they are causing harm and do not give a toss.

IMO that is a distinct possibility.

I would be breaking the site rules if I said how this makes me feel. Instead I'll just invite us all to imagine the state of Miller's reputation in a few years time if the science comes together as predicted...

Thanks! Do you know if there is a time limit for responses?

Can patients reply or is it just 'professionals'? Aware it's a long shot but my experience (like many others I'm sure) serves as a very direct rebuttal to the ideas expressed in this piece (although saying that I haven't made myself read the entire thing yet) It might be valuble for doctors on...

Yes and whats worse the abuser is going round convincing everyone we're not to be trusted and they need to abuse us too for our own good... I need to see a gastroenterologist and this is giving me even more trepidation. When I spin the wheel with doctors it so often comes up BPS.

I cannot put into words how utterly demoralising it is to see the BMJ not only publish but request this article, especially during ME awareness week. That timing cannot be an accident. The most dangerous thing anyone ever gave me for my ME was false hope. Even if we cannot hold individuals to...

I know ME Research UK has funded some of Rob Wusts muscle biopsy work, so they might perhaps be a good fit?

Lets hope it really will say it in the history books.

I was offered a trip to Leeds (from Suffolk!) by an OT in 2023. Luckily my first reaction was to think that it sounded too good to be true and to come on here and see what people said...

There is something unspeakably sick about medical professionals saying that someone whose life was destroyed and ultimately ended as a consequence of listening to them actually just needed to listen to them harder and do what they said more.

Yes I would happily donate to this project and I'm sure that others would as well.