Interesting drug table.
Several items on that list I would like to try, but insurance won't pay for it, e.g. Valcyte, IVIG, IV saline, Rituximab.
Gotta be careful with the stimulants and antidepressants; they can make things worse. The CDC website now warns:
"doctors should use caution in...
The Open Medicine Foundation B12 study a couple years ago was 15mg methylcobalamin injected every other day and 15mg L-methylfolate (MethylPro). As a trial participant, I can't say I saw any benefit.
After the trial, I switched to sublingual methyl B12 for a while (5mg). Eventually, I stopped...
I only went on about PANDAS because I suspect that I had it recurrently from kindergarten into adulthood (never diagnosed, never treated, Strep A).
Now that I've read @Arnie Pye 's detailed description, it's probably not very relevant. Carry on. ;):)
And I hope you find answers.
Should add that adult PANDAS is a real thing and very under diagnosed. Strangely, it seems that it's only a few psychiatrists that are diagnosing it. Primary care docs aren't looking for adult PANDAS.
But the question of whether one can get PANDAS as a child, and left untreated, have it persist...
Whether Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) can persist into adulthood, the answer is uncertain:
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