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  1. Sean

    Finland: 2023 Helsinki University Long Covid conference

    One possible good out of this conference is that it might indicate how the BPS club is becoming more insular and isolated from mainstream medicine, and irrelevant. Having them corralled off to the side like that would help make them readily identifiable to the rest of the world so it can keep a...
  2. Sean

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    I used to eat a lot of fruit but have a lot less now, after learning about the issues with fructose. Try to stick to the recommended 1-2 pieces a day, and shift the balance towards more vegetables. Not always easy with lots of delicious tropical fruits available here, and often quite cheap...
  3. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    "I sit on a man's back, choking him, and making him carry me, and yet assure myself and others that I am very sorry for him and wish to ease his lot by any means possible, except getting off his back." Leo Tolstoy, Writings on Civil Disobedience and Nonviolence
  4. Sean

    Finland: 2023 Helsinki University Long Covid conference

    NICE didn't do that, you guys did it to yourselves with the "methods and procedures that [you] have developed over 30 years". NICE, and patients, simply pointed that out. Guilty as charged, m'lord. And proud of it. I give them credit for taking ownership of those methods and procedures.
  5. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Because they don't care. And why would they, given they just keep getting away with, and indeed rewarded for it. How many of their senior ranks have lost their clinical, academic, or advisory jobs, or even had a demotion, over any of this? Their behaviour post-NICE, including with Long Covid...
  6. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Thanks for that, @bobbler From the link [bolding mine]:
  7. Sean

    Ordeals and the Empathy Gap

    I have had a few full assessments, but nothing at all for a bit over a decade (touch wood). Given my age and that it is only about 7-8 years until I hit the normal retirement pension age, the length of time I have been sick and on the disability pension, and the realistic prospects of any...
  8. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    IIRC, Atwood has said that she derived The Handmaiden's Tale from history. Not in the more direct and only somewhat fictionalised sense. But rather in the more general sense that none of what she was warning about was historically unprecedented or fictional, that this kind of stuff had happened...
  9. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Including on the health and stamina front. Which is a bitter irony.
  10. Sean

    Long Covid in the media and social media 2023

    For those using Firefox browser... I just discovered this extension that automates it for you, and it is also fully open source. https://addons.mozilla.org/en-US/firefox/addon/old-reddit-redirect/
  11. Sean

    Reflections on Patient Engagement by Patient Partners: How it can go Wrong 2023 Richards, Poirier et al

    Authority rarely, if ever, willingly hands over power. Mostly it has to be taken from them. Especially when their hold on it is not legitimate in the first place.
  12. Sean

    Cushing’s Disease Presenting with Functional Neurological (Conversion) Disorder 2023 Ashrafzadeh et al

    How can any sane decent human look at this and not see an obviously appallingly cruel and easily preventable disaster? :mad:
  13. Sean

    Covid-19 vaccination experiences

    I get it in one sense, that they need to be sure the mask the patient is wearing is new and not contaminated. I worked in a hospital for a few years before getting ME*, including with a fair bit of contact with patients, and they don't always make the job easy. *Which is why I am not afraid to...
  14. Sean

    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    Given current state of knowledge, I don't know (and neither does anybody else) if PEM is unique and definitive to ME. But even if it isn't, then it is damn close. At the very least it is likely to pick up most ME patients, even if it drags in a few others. The real problem with PEM is the lack...
  15. Sean

    Treatment of functional neurological disorder: current state, future directions, and a research agenda, 2020, LaFaver et al

    'We don't know. We got nothing.' The only advance in FND ever is their ability to market it to the gullible, the desperate, and plain old cynical.
  16. Sean

    Characterization of exhaustion disorder and identification of outcomes that matter to patients, 2023, Lindsäter et al

    Many jobs have strict limits on hours worked and scheduling, like commercial pilots, air traffic controllers, etc. Remove the arbitrary presumption about the causal role of "prolonged stress', and what they are describing could easily be the features and consequences of trying to live with the...
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