Some more of the more interesting bits
People with notified Covid-19 infections in south-western Germany were sent a questionnaire asking about 30 symptoms before infection, during infection and at the time of the survey (6-12 months after infection). Respondents could add other symptoms. For...
Preprint: Prevalence, determinants, and impact on general health and working capacity of PASC 6-12 m after infection..., 2022, Peter, Kern et al
Epidemiological study of Long Covid in Germany, of a good size - PEM not yet used as a symptom.
Just as a side note - NICE recently made a mess of the Chronic Pain guideline, and, even more recently has twice made a mess of the Long Covid Rapid Response Guideline. The success of the NICE ME/CFS Guideline is the result of the good work by particular staff and the appointed committee, and...
I'm quite sure it isn't the best to cite. Yes, there is an editorial note on it that says
But it doesn't say the research has been formally discredited by Cochrane.
And then the review is still there, in the 'Common Mental Disorders Group', and it is written to make CBT look helpful for...
There's no indication of how these research recommendations are going to be implemented. For example, is any organisation on the implementation panel going to liaise with NIHR? Or is some other way of funding the research planned?
International professional association for post-viral disease...
I agree with most of what has already been said. I actually was underwhelmed with the quality of the UK ME/CFS CPD module - I think it needs some work before it is as helpful as we would hope a CPD course to be. I don't think it should be recommended in its present form (my comment and thread...
Webinar by Dr Karl Morten on Energetic Dysfunction in ME/CFS and its relevance to Long Covid. Linked here:
Dr Karl Morten - UK researcher based at Oxford University
Thanks for continuing to engage with us @Mariana.
I was coming to the thread to say something very similar to what a number of you have already said. I suspect most young people will have difficulty having the necessary perspective in their first few years to be able to articulate what could...
I imagined it a bit like going through people's rubbish can tell you something about how they live, looking at the easy-to-get bronchoaveolar lavage could tell you something about what was going on in the lung tissue. Although they do talk about T cells (and other immune cells) in the airways...
Checking out some of those references for an increase in psychosomatic conditions:
[7] A. Cosma, G. Stevens, G. Martin, E.L. Duinhof, S.D. Walsh, I. Garcia-Moya, et al.
Cross-national time trends in adolescent mental well-being from 2002 to 2018 and the explanatory role of schoolwork pressure...
Funding
Maybe someone might like to write to these funders.
Actually, although that statement in the conclusion was not referenced, an earlier statement about FSS increasing was:
So, I was wrong about that.
Being able to attend school only half time is, of course, not at all normal. I can think of many people with ME/CFS who were initially severely ill, and who improved over the first few years, either due to some healing and/or learning better how to manage their illness - all without any 'joy...
Just a few more points.
The prevalence of functional somatic symptoms 'identified' was just 4.4% in young people seen and 9% in adults seen. That's a long way short of the 30% of medical service time being taken up in a tsunami-like way by these time-consuming burdens that was put about in the...
(There's an issue in the paper with the numbers of the scale turning into reference citations.)
It just boggles my mind that academics would go out of their way to ask doctors if they found contact with patients burdensome, and then not care about why they found it burdensome. I mean, how do...
Let's record the names of the people who are happy to put their names to this nastiness:
L.K.Klastrup a
M.Rosendal c,d
M.T.Rask c
K.S.Christensend e
C.U.Rask a,b
a Department of Child and Adolescent Psychiatry, Aarhus University Hospital, Denmark
b Department of Clinical Medicine, Aarhus...
Functional somatic symptoms in youths in general practice: A ... study on prevalence, clinical management and perceived burden, 2022, Klastrup et al
A paper from researchers at Denmark's Aarhus University that labels young people with undiagnosed symptoms as 'time-consuming and burdensome'...
:) I read that first as FFS @Sean, which also applies.
more 'burdensome and time consuming' than someone with a specific diagnosis. Klastrup et al, you mean the doctors have to make more effort to try to find a diagnosis when the diagnosis is not yet recorded in the person's medical notes...
It's a bit hard to know from the abstract, but, having looked at one of the links Snow Leopard provided, Emily probably does deal with things comprehensively, including exploring the issue of stigma.
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