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copying the link from the tweet above https://mg.co.za/africa/2021-02-28-living-with-long-covid-in-lagos/ I thought this was a terrific article, well worth a read. It dates back to February 2021. Well done to the author, Bolu Akindele.

A number of posts about an article 'Why Britain is now the capital of Long covid' have been moved: BPS attempts at psychologizing #LongCovid Edit: Some posts have been moved to: UK: TUC (Trades Union Congress): Long Covid at work surveys and reports 2021 onwards

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/its-like-being-possessed-demon-18396486 It is fairly clear from this quote from June 2020 that Paul Garner knew what he was dealing with, was feeling optimistic about his own recovery and expected that most people would get...

https://blogs.bmj.com/bmj/2020/05/19/paul-garner-covid-19-and-fatigue-a-game-of-snakes-and-ladders/ Indeed, and as I said before, I do not understand how Paul Garner has come to hold his current views or his evangelism about sharing those views with the world. I do not share his views (ed.) or...

To me it looks as though he was well on his way to recovery when he was captured by the Norwegians with particular views. How would you have us demonstrate our empathy for Paul Garner? Paul Garner was uniquely well placed to make a positive difference to people with ME/CFS. He's benefited...

We have a thread on a 'blood cleaning' process that appears to be related to a Hamburg clinic offering treatments for ME/CFS and Long Covid: Nature - Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?, 2021, Bornstein et al Here's a link...

Am I right in thinking that a test that involves going just a bit beyond ventilatory threshold on consecutive days would be enough though? I don't know what amount of exertion required to get to that point is for people at different levels of ME/CFS severities, but I suspect many of us have to...

Thanks for doing that @cassava7. That sounds encouraging, but to me, the very clear separation and the nature of the data continues to leave room for doubt. There is a conflict of interest in the clinic demonstrating that they provide a test that is essentially perfect in identifying people...

To be fair, the authors did identify some of the problems with their study: But, those limitations did not stop them deciding that the study 'seems to confirm' a role for the hands-on back whisperers in the abstract.

It's too easy to spot the problems with this one: No controls, open label, subjective outcomes, and the treatment approach was 'throw various things at the problem including drugs', making it easy to claim that the woo treatment created any reported benefits. This is part of the treatment:

I don't know. When I came to the city I am in now, I asked someone in the local ME/CFS support group who was a good doctor. I got a recommendation and went along when I had an ear infection. I told the doctor that she had been recommended by the group, thinking she might be pleased to have...

It's about, when the patient says, I have pain here, I am experiencing this or that, that the doctor believes that they are an accurate witness of their symptoms, until there's very good evidence otherwise. If they think the patient might be getting things wrong and they aren't actually feeling...

Excellent to see the use of biobanks for longitudinal research. It seems like a nice study. I thought this was interesting. They compared nearly 400 people who had had Covid-19 with nearly 400 who had not - that's a big sample. But, if they just relied on the comparison at that single...

Every effective seller knows how to package and market and deliver their product to maximise sales. People choose to do GET - do we blame them for their bad choices, or those who offer the therapy, or those who conduct sloppy trials that make it appear effective, or the people who do sloppy...

A cold pack isn't a full-on alternative therapy, of course. But, I don't believe those 'multiple research studies'. We've seen too many rubbish ones. If a cold pack really helps post-surgery pain, why wouldn't you tell everyone, rather than just the patients who look at the menu and think...

11 authors. That's a big group. So, just from the abstract, I think people who reported a non-infectious ME/CFS trigger were more likely to be seronegative to EBV and chicken-pox/shingles than other ME/CFS groups. But the association depends on the seropositivity cutoff. And people who...

That's terrible @shak8. There's that story about Mao promoting traditional treatments* and traditional healers when China was not able to meet its people's demand for good healthcare. I'm not sure how much truth there is to the story, but that is what this sounds like. Health care system...

Interesting to track who is getting involved in this type of hypothesising, I think. NilsKappelmann a,b; RobertDantzer c; Golam M.Khandaker d,e,f,g a Department of Research in Translational Psychiatry, Max-Planck-Institute of Psychiatry, Munich, Germany b International Max Planck Research...

I could not agree more. @Hilda Bastian, @Medfeb, @Michiel Tack's analysis of the Cochrane's MetaBLIND study is important reading for everyone involved in the ME/CFS Exercise Therapy review. Cochrane has had an institutional blindspot when it comes to bias due to lack of blinding. Anyone who...

That's a great find, and a great analysis Michiel. The author of the review is Helene Moustgaard; her response to Michiel's analysis (linked at the bottom of the analysis) is quite odd. In her letter to Michiel, she appears to be saying 'yes, yes, of course we know about all those problems...