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This reminds me, NCNED in Queensland, Australia have just announced an LDN trial - I've posted the details here: News from Australia

Email from Griffiths University/NCNED about a forthcoming LDN trial: (I wonder who has funded this) We have an LDN thread here. Making a case for LDN (Low Dose Naltrexone)

Thanks for the mention of David Bell's work, @Denise and Snowdrop. It was interesting to read that thread in the context of Garner's assertions about normality.

I also found Paul Garner's suggestion that he's been on a two year journey, and the content from the 10 minute mark interesting: It seems that Paul Garner is not working the hours he used to work. I'm reminded of the young people in an ME/CFS followup study by Katherine Rowe. She found that...

I think the second reviewer (anonymous) gets to the heart of the issue with the paper better, the issue that forum members also identified as the key problem: Edit - although I take on the board the point some have made that it is possible that people with ME/CFS might have an abnormal...

It's not really even a study. It's a report of medical records. Which, in itself, is fine. Yes, the prescribing of unevidenced treatments based on a test that is almost certainly irrelevant is a problem. But the testing is also a problem. The clinicians convinced people to have their...

Here's the text of the ZonMw call in English https://www.zonmw.nl/fileadmin/zonmw/documenten/Corporate/Subsidies/PDF_s/NEW_Call_Consortia_Cohort_Research_MECFS.pdf It's a pretty big deal. I hope some of our members are involved in the consortia preparing proposals. Oh, also note that the...

When I read material by Trish Greenhalgh, I want to make a 'hlagh' noise too. The title is fixed now.

The link in the Merritt Wellness Center page goes to a pretty interesting CDC article with references, copied below: The takeaways do indeed seem to be that at the time of writing, there was no FDA-approved diagnostic test for mycotoxins in human urine mycotoxins are found in the urine of...

Another source (Merritt Wellness Centre, which seems to have its own conflicts of interest) says

A recent paper reported on two tests for mycotoxins (toxins produced by fungal species) that patients of Nova Southeastern University’s (NSU) Institute of Neuro-Immune Medicine (INIM) clinic in Florida had been asked to do. The clinic is prescribing treatments (glutathione and charcoal) on the...

Yes, and it's quite possible that they do. There are hardly any studies of ME/CFS incidence in populations on low income countries. I have heard quite a few people from high income countries who report getting ME/CFS during or immediately after a trip to a low income part of the world. My...

The link worked for me @Art Vandelay. Thanks for sharing this - I thought Natalia did a brilliant job.

The title is just where the problems start. Hawkins manages to trip over a remarkable number of ME/CFS landmines in that one short piece (e.g. I count at least 11 items of misinformation or statements that will mislead in just the two paragraphs copied below). Given that she seems to write for...

CDC info here and here "Strongyloidiasis is a disease caused by a nematode, or a roundworm, in the genus Strongyloides. Though there are over 40 species within this genus that can infect birds, reptiles, amphibians, livestock and other primates, Strongyloides stercoralis is the primary species...

@Helene, you must be very proud of your daughter. Nadine is an impressive woman, she spoke well on the interview. I hope the birth of your grandchild is a joyous time for you all.

This seems to be a key argument that has been put around after the NICE guideline was published. I think many of the BPS proponents (and people who might regard themselves as neutral parties also) genuinely do not understand the enormous bias created by a combination of a questionnaire on 'how...

Here's another thread that discusses the male experience of ME/CFS: #MEAction: Toxic Masculinity Made my ME Much More Punishing We have the tag 'male experience' to label relevant threads - see top left of this thread.

Bruce Patterson, Corresponding Author Ram Yogendra, Jose Guevara-Coto, RodrigoMora-Rodriguez, Eric Osgood, John Bream, Purvi Parikh, Mark Kreimer, Gary Kaplan, Michael Zgoda Ah, @dreampop, I see Bruce Patterson is an author. I have reinstated my skepticism defences. We have a number of...

That's probably a bit unfair. The study probably helped them develop their ideas and might give potential funders of a bigger blinded trial confidence. They say: It looks like they understand that this isn't proof that the treatments work.