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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    yes they don't get what is really going on in that interaction. because it is a tilted communication technique and power balance they don't realise that the response isn't to being actually reassured but being given the message 'that's my job done - i hope that you are reassured I have checked...
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    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    JUst going to copy and paste these phrases because I think they are good and might be alternatives to eg 'energy management' which can get misconstrued: "Discuss energy conservation techniques and supportive measures. They compare post covid to ME/CFS"
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I cross-posted below above. But this is interesting. Thanks for posting it
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    This first point is useful insight regarding the way the test ended up not being re-run or calibrated when surely, even if you are so-minded (to confuse disability with other concepts), as soon as you look at how far off a significant chunk of ME-CFS were the whole way through from even...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Interesting and really well laid out to get these points across. It builds/layers each finding in a way I think that most will get what you are demonstrating very clearly. I like the approach. I am yet to catch up with the next posts, so apologies if I jump the gun on you saying this in those...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    OK @Evergreen one more version (let me know if the rose works OK) because I'd had the warm-up rounds in grey and lost it while playing with the background I've reinstated that being greyed for the first 4 rounds, but of course it is pros and cons and it could be that adds in contrast the...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Sorry I was asleep/resting for a while there. I'm going to have to find a way to save some of these colours. You'll probably tell me some of this is already available and I'm just missing the knowhow but.. Now I know all of this I'm a bit thrown why packages like excel don't have eg colourblind...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I've tried rose, as lavender looks a bit bright, burgundy/maroons can't read through it (which is fine for the 'dotty bits' but then what I pair for the header parts is the question) and I didn't know whether the more orangey/brown red palette would be worse or better than going down the...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    @Evergreen OK please do not be afraid to tell me if I've made it worse, paler but potentially brighter - I'm not sure myself if the pale blue seems even more bright (but the yellow seemed to just add more complication). I've changed the lines to navy. Let me know if it works for you or any tips...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    OK please do not be afraid to tell me if I've made it worse, paler but potentially brighter - I'm not sure myself if the pale blue seems even more bright (but the yellow seemed to just add more complication). I've changed the lines to navy. Let me know if it works for you or any tips on...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    :thumbup: I did think some mightnt be able to and nearly wrote the words magic eye etc in the ‘whether people find it useful’ etc but then conscious of rambling on I’m assuming it wouldn’t and don’t want to minimise but if any changes like me ‘going pastel’ on colours or playing with lines...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    EDIT: added latest table which hopefully is easier to look at colour-wise. I lost the old quote stuff, so I'm quoting myself from the old post in the first bit but removed things I've now changed as it was a work in progress with rows missing then etc (apologies for any repetition) OK, a new...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    another spot that is puzzling me (always a chance it is a data error) is that in total HVs did 734 tasks vs ME-CFS 707. EDIT: scrap that (as each person did around 40 tasks then it starts dropping off if they did lots of hards) That is more than what is accounted for in the different number of...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    OK I spoke to soon of course. I forgot about the warm-up rounds. SO the following tables exclude the warm-ups/trials with a '- number' ANd also excludes HVF (with the info if they had been included on the right) Which make for the following calcs by 'person' (15 ME-CFS participants, 16 HVs)...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I'm just adding this as it is an update to the HV vs ME-CFS No hard selected by level of probability, this time with HVF excluded (I've done a table to the left to show figures if they were included). These are just crude numbers and % without the extra variables included. I haven't looked to...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    :rofl::bawling:You'd think if it is amphetamine as I'm assuming it is ('speed') and the 'd' doesn't make it something different that both of these effects are both relevant and expected and part of the 'normal response curve' if a population were given that drug? thrill-seeking or whatever...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Interesting chart. I'm trying to wrap my brain around without strategy how the pure maths would operate here: OK in conclusion there is no way of even guessing this out. SO any approx heuristic is enough. And at the end of the day ... even if people could win $8 (which I'm pretty sure they...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Has anyone else got in touch to help tackle the dredging through the table of papers that use the EEfRT to answer these questions? And are there other questions we have? Would it be helpful if we divided them up somehow (either by questions we are looking for the answers to, or by a group of...
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    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    and this is probably the important bit to note because probably all, but certainly the iller ME-CFS would be in rolling PEM when doing the task and the fatiguability can be increased in PEM as well as other symptoms too. The 'rolling part' meaning that you get 'immediate hurt' from exerting in...
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