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Indeed - good spot/point What’s the cliche about the wheel turning or something? Just history repeating same error

Exactly

Maybe, but he does seem to be looking at this from a good number of angles. I'm reticent to without a thorough dive through everything sign off someone as thumbs up but at least his lists of references aren't 'limited'. He mentions that these portable monitors now being readily available has...

I'm intrigued because from the outside it seems like there is maybe a 'hi-jack' (I think someone else used that term, I hope it is accurate) of a term that has been around for quite a while (?) and does need taking seriously by the right people with the right intentions. Which I suspect is...

Or 'bombast'. There are many professions/jobs where the instructions given, certainly by some training back in the day, was that appearance and staying in command was all. For example teaching and being at the front of the classroom you will still find some who have been led to believe (for...

I was intrigued by the second half of the first quote here: Obviously the word 'confident with their diagnosis' is somewhat ambiguous just due to the nature of the word, but can be interpreted when taken with the line 'misdiagnosis of FND is detrimental to prognosis' to perhaps be seeming to...

Yes! Brilliant news if so.

If so its significant fir two reasons off top of my head: 1. any inference by authors that ideas of pacing or potential harm had come from anything ‘internal’ to the pwme, or were a concept related to ‘a condition’ vs it was being ‘instructed’ externally by someone in charge (or said as a...

But there is also in eg marketing/business literature discussion of saliency and involvement. None of which are any insinuation on the 'emotional processes' of the individual, just state that the item in question as presented is more relevant to some than others. I doubt this goes near...

To be clear what I mean by this is that this / these types of questions breach basic guidelines of any research (whether you are market research regulated or any other subject) of making sure that any question you ask must be one that the respondents will be able to /qualified to answer the...

If the researcher turns out to not be doing anything special method wise (really bad if these were all used fir different contexts and aren’t even being checked if it transfers) or more appropriate to the pwme than the nhs would for these and indeed might be getting less oversight (surely the...

Interesting point re a mindset that is applicable to so much who knows whether if the approach had been to see it as a symptom and be monitoring all blood pressure then having (what nhs seems to infer to the world is some sort of wonder database of peoples illnesses) actual monitoring of what...

I would underline ‘do without payback’ and ‘deterioration’ and the thing is that currently we are still in a battle with behaviourist that really only we can tell them what that is whereas underneath they STILL i think have beliefs , flase ones which the Nice guideline was clear was the nub of...

This well summarised there is an important question to be raised with the MEA here and these questions/the answers to them are useful in knowing what is really going on and who has been driving this vs who does have any power to change this if the brief suggested anything different re promises

I’m also concerned that despite asking questions this detail wasn’t sufficiently explained so input could be focused appropriately vs what they planned to do being a ‘best fit’ even within that remit. which is why I’ve been confused and asked elsewhere whether there is some standard protocol...

Indeed that information is pertinent because whether it was justified to pay for it seems in my mind to rely on the ‘control gates’ they have to insist of changes in methodology and oversee stakeholder input being heard properly (not just preferred voices and a nod to consultation whilst doing...

I agree with all of this.

Yes there are lots of papers re:whether it is more accurate to ‘measure the gap directly’ bs calculate the gap by measuring two different time points across lots of literatures particularly service management for example. and of course it sounds like medicine would agree from a method point of...

It’s a very badly worded question. Basic market research how to word a questionnaire says you shouldn’t have multiple loading of questions into each other and you need to make clearer what is being asked. my gut when I was thinking how you’d make these assessments better was to ask people for...

Only an app could inform that - because the reason it’s so hard is we are interpreting patterns (have we had more bad days vs threshold/activity challenges, were these days worse than they would have been the month before) it’s often only three months in you can be sure ‘it’s worse’ due to...