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  1. rvallee

    Functional Neurological Disorders - discussion thread

    Every explanation I have seen was exactly this, that they are too easy to fake. The other side of this is of course an admission that no one can tell either way, so that labelling something as mental illness is completely unreliable. Basically if a physician can't tell that something isn't...
  2. rvallee

    Structural Iatrogenesis — A 43-Year-Old Man with “Opioid Misuse” - Stonington and Coffa, 2019

    Maybe not in this case but there are many health care systems in the US that require physicians to only prescribe exactly as many pills as needed and get regular appointments to get them filled again. With zero to spare, so whenever something comes up to delay an appointment where do people turn...
  3. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Early on Wessely was very focused on the idea of "saving face", when we go see a physician with psychological problems and are not given the opportunity to "fall into the sick role" it's necessary for the physician to help the patient "save face". So much damn projection. But here they are...
  4. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Seems to have escaped notice, October 1. Not that there is much to notice, basically "we are right" and also No True CBT/GET, or something like that. Also it appears that Sharpe and White have un-retired from... "chronic fatigue" I guess... research. Again. I'm sure we will be reading all over...
  5. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    https://kclpure.kcl.ac.uk/portal/en/publications/evidence-based-care-for-people-with-chronic-fatigue-syndrome-and-myalgic-encephalomyelitis(536398c9-3ebe-4faf-b3bc-e01257e82c65).html Abstract (Paragraphs mine for legibility) Chronic fatigue syndrome (CFS), sometimes referred to as myalgic...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Journalist and production assistant at CNN.
  7. rvallee

    Pain-related post-exertional malaise in (ME/CFS) and Fibromyalgia: A systematic review and three-level meta-analysis, 2021, Barhorst et al

    This is where PESE can remove some confusion. Of course if pain is a symptom of an illness characterized by exacerbation of symptoms that symptom will be exacerbated, it's literally what it means to describe. Just like adding more water to something means it will be more wet. It's literally what...
  8. rvallee

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Somehow between first reading it and opening it again to copy a quote, it has been made available only to members. But it includes a quote on how it's significant because of Long Covid... by mentioning how fatigue is also common in LC. And it reminds me of drug ads in the US with the "this is...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    We did! Many others did. And no one paid attention to it. A few months into it it was annoying but 18+ months into it it's absurd that the recent past is so thoroughly ignored it may as well not have happened.
  10. rvallee

    Functional Neurological Disorders - discussion thread

    This has been the recent development, arguing that it's not longer a diagnosis of exclusion. Everything else is the same but it's the natural course of a con, you can only proclaim more confidence in it over time. And of course they rely exclusively on chronic illness features to prove their...
  11. rvallee

    Functional Neurological Disorders - discussion thread

    I'd say it has 99% acceptance, it's considered as true as "the blood belongs in the body" as far as most are concerned. Not everyone fully buys into it but I have more than enough fingers to count the number who have voiced even mute criticism over the concept. The only dissent is over...
  12. rvallee

    Neuropsychological profiles and cerebral glucose metabolism in neurocognitive Long COVID-syndrome, 2021, Dressing et al

    Uh? Odd choice of words. The ongoing "all our tests are normal but we can't possibly imagine that we just don't have tests for that" is getting way more than annoying at this point. Of course if you keep administering the wrong tests it's not going to tell you anything. It's the most basic...
  13. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    :banghead: (Auto-translated) Long Covid Coach https://tvthek.orf.at/profile/Mayrs-Magazin-Wissen-fuer-alle/13892840/Mayrs-Magazin-Wissen-fuer-alle/14109306/Berufsbild-Long-Covid-Coach/15016489 There are now tens of thousands of people in Austria who suffer for months after being infected by...
  14. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Canucks: Brandon Sutter experiencing long-haul COVID symptoms https://theprovince.com/sports/hockey/nhl/vancouver-canucks/canucks-brandon-sutter-experiencing-long-haul-covid-symptoms It's honestly hard to describe just how much peak conditioning pro hockey demands. It demands all three of...
  15. rvallee

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    Yes but not excessively. At least not usually. As long as I keep my temperature in check, though, I can go from cold to blistering hot in seconds but otherwise seem to sweat as usual.
  16. rvallee

    News from France

    Another in Paris. Given the size of Long Covid and how small those protests are, the protests the ME community organized over the years look pretty damn solid all things considered. I wonder if there will ever be a fair and thorough account of everything that was done to change this.
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ? The debilitating effects of long Covid have just begun to hit economies A study of German footballers revealed they still weren’t fighting fit six months after recovering from infection...
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