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And another one for the file of so-called lessons learned from the AIDS crisis. We may be vindicated with time, but we will have been just as hated, if not more because it has lasted far longer. And that anger was explicitly and disgustingly used against us, just like it was. Zero lessons...

It's pretty clear that medical information is communicated top-down. The top hasn't communicated this because they are in denial. Medicine is seriously lacking in leadership, there just isn't any.

He says things his medical peers want to hear. Same as Sharpe and Wessely or Stone. Nothing special, certainly not a luminary. These people are in the marketing business and there's plenty of demand for it, they don't even have to make any effort at it and there's basically infinite money...

There is a legislative debate today in the French parliament for a LC resolution, 2nd debate. It appears to have unanimously passed: I don't know much about French politics, legislative resolutions are typically non-binding so I have no idea how much bite this has. I assume none at all...

You know what they say, when reality conflicts with your model, stick to your model, put fingers in your ears and go LAH-LAH-LAH-LAH! The model is everything and reality is just a pale reflection of it. The ends justify the means, all the means. Oh, wait, no, it's the exact opposite. Although...

It would be great to bring this to the attention of long haulers, since they will be covering LC as conversion disorder. Seems to be the same idea with vaccine reactions, especially problematic considering how much more serious it is for pwLC and pwME. They have to know about these things and...

That's one interpretation. The other, more rational, would be that whatever they use to evaluate clinical significance is not reliable, or natural improvements are common enough to occur, which would be consistent with a more likely microbial infection being dealt with over time, making the...

Hell I've seen good events being twisted into being bad, like getting a promotion but now that's just too much stress, or something like that, no matter that, no, it's not, in fact it's a very positive thing. They don't care. Ideologues never care about being wrong. Or about what they're doing...

But they'll keep saying it anyway, it's even the first thing they say in the abstract, they repeat their hypothesis as a fact. Because they don't even trust their own research unless it says exactly what they wanted it to say. There are other papers that suggest otherwise, and as long as they...

I think the idea may be that vaccine mandates are becoming more common, with consequences for those who do not comply, and to make it a valid justification. But I just can't imagine that exemption actually being taken seriously by health care services. It would be a nice idea but has no chance...

Meh. Just skimmed and found those gems in the same list: They are simply not listening, at all. Or paying attention. Not even a bit. And yeah there's Alan Carson, where I stopped, so they are just so completely out of their depth it would actually funny if it weren't for the consequences, and...

Hmm... bummer. It was from a GP running a Long Covid clinic (at Johns Hopkins, I think) saying they are having problems finding physicians to work there because LC simply isn't taken seriously enough, hardly anyone's interested. The first of 2 is still there... But I just noticed this was from...

It's absurd that this late into it, there is still a majority of physicians who still cling to the idea that people can't get infected more than once, or that subsequent infections would be rare and guaranteed to be benign. Or pretend to, I can't tell at this point. The entire premise of herd...

It seems that some French long haulers who were hospitalized are being sent ads to participate in a mindfulness thingy by the health services. But wait, there's more: they're charged €400. Because it's not insulting enough, asking people to pay for their own gaslighting is... well, typical, frankly.

Without addressing the decades of lies overt discrimination, and plain failure, creating a state of hostility to this entire category of disease, this will be a serious problem, it could even derail efforts right at the start, fueling even more denial of the "we don't really see those patients...

N=1 with a highly fluctuating illness makes this uninterpretable, adding to that the high % of natural recoveries making any attribution basically reaching. If the "placebo" effect were anything but errors of measurement (or more commonly the error of not being able to measure accurately but...

Those numbers are a massive undercount, do not account that the vast majority are never diagnosed. So the misdiagnosis rates and delays to diagnosis are basically a rosy picture that represents the best case scenarios. Denominators are important. What good is awareness and recognition if this...

I never you knew you were that much of an optimist. It's nice to dream, though. I will be watching for flying pigs, if anyone asks. They're just a little airborne, they're still good.

I have confidence in the IAG. Precisely because it's independent, and relative to how independent it will show itself to be. Choosing Bastian is the only good decision Cochrane has made in this entire mess. But Cochrane did not put in the resources for it to succeed, and I don't trust what they...