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What's amazing is that in going with denial, this guarantees the worst possible outcomes. Essentially medicine and governments are complicit in making every possible decision at every possible opportunity to make the problem the absolute possible worst while at the same time doing everything...

We literally know nothing, what is "known" is at best speculation. Quotes like this are so annoying when you see how common they are. What is even the point of pretending? Maybe just so as not to admit to total failure, given that it's the product of an obsessive ongoing effort going back...

I assume this is to distinguish from generic CBT, since we know the CBT for ME is completely different from, say, supportive CBT for cancer or phobias. Even though it's one of their biggest selling points, that even cancer patients see nothing wrong with CBT, showing how silly we are to refuse...

I'm not sure where that claim comes from, just that it was funded. The site looks like a crowdfunding platform so I'm frankly not sure what this means. Was hoping someone else knew more.

I mean the BPS overlords constantly tut-tut about the discrimination we are facing, oblivious to the fact that they are its cause, because to them that stigma is not "understanding" their thing, so they want more of it, which leads to more discrimination, which means their skills are more needed...

This appears to be plan B, Per Fink of course. If it's not the LP, it's basically the LP with a fake mustache. It explicitly refers to the rejected study to justify it. I will safely assume they will actually use the rejection in Norway to emphasize how it's actually more important than ever...

Copied post from Lightning Process study in Norway - June 2021 - not approved by Ethics Committee, with some moved posts following. A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al has some relevance...

There it is, after decades of re-runs of the jumping the shark episode, this is running an entire season of nothing but the jumping the shark scene. An actual discussion over "angels dancing on hairpins" that is completely serious and oblivious to its own absurdity. They are discussing this...

I doubt any such clinic keeps any record on any of those data, at least not in a useful way. I assume this will be similar to the "fatigue" clinics, with every clinic basically doing whatever they feel like doing. But it's good to see activism from long haulers that goes beyond simply hoping...

It really looks as if medicine intends to bury this entirely and either pretend it never happened or push it in the psychosomatic void of doom. Since it's easy for governments to find medical advisers arguing that, it seems that they did. And since the public message is obviously one of...

Heads they win. Tails they win. Sideways they win. Never flipped they win. Endlessly spinning they win. Problem is letting them pretend they won despite not playing. The blame is in a system that lets them do that, frankly expecting people to be better than this in any context is plain foolish...

True. Damning. But true. They have one job. This is the job. Damning. Anyone in health care gonna do anything about it? Nah? It's up to patients? Who have no voice in the system? Are systematically belittled and gaslighted often precisely because of the nature of their disability? Noo, let's...

You got it right. It's not just their conclusion, it's their starting point, assumptions underlying everything. Still is their conclusion, because it's circular logic and the exact same idea behind Wessely's ideology of there being only one "functional disorder", aka the mythical conversion...

Thing is, whenever something shows up on any tests the most common reaction is how this must mean it's not "functional" after all, since by definition functional means no abnormality should show up. This is interesting, though, to pretend that there is physiological evidence for something...

No one is reliably counting Long Covid yet so no way of knowing without a large prospective study. I'm aware of plans to do so but don't think it's started yet. The CDC have said they have no plans to even consider counting LC. Governments want to open up, LC stands against this and will...

And this comes from people claiming they effectively manage those made-up conditions with high success. Who readily admit they have no evidence for it. While also claiming they do. Because nobody cares about consistency, that's what happens when diseases are de-medicalized: it's no one's problem.

What this shows more than anything is that they don't even trust their own results. They know it's not valid research, it doesn't tell us anything about anything. So they simply dismiss their own negative results, an easy thing to do since they know none of this matters. They're selling a...

Especially in how it's always presented: "fatigue was reduced". No, it wasn't even measured, without a baseline and using a non-linear grading of relative meaning framed ambiguously in such a way that the participant is usually not answering the question the same way it is meant by the...

I don't understand how people can debase themselves this way. Just shameless lying and misrepresentation without consequences. But of course the answer is simple: they are rewarded for it. So the people really responsible for this are the bystanders too cowardly to point it out. It's a proper...

Seems to be based entirely on citations for her research and how her work is overhyped, using a machine learning algorithm that obviously cannot distinguish good research from bad research. So essentially quantity and marketing matter, quality does not.