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  1. rvallee

    BPS attempts at psychologizing Long Covid

    Mayo gonna mayo... "Change your words". And in the US, this means people will be paying for this privilege.
  2. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    (Actually the paper was next in my list of news bookmarks so here it is) Dysregulation of brain and choroid plexus cell types in severe COVID-19, Yang et al, 2021 (Added paragraph break) Though SARS-CoV-2 primarily targets the respiratory system, patients and survivors can suffer neurological...
  3. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    (Can't find a link to the study in the article) Stanford researchers find signs of inflammation in brains of people who died of COVID-19 A detailed molecular analysis of tissue from the brains of individuals who died of COVID-19 reveals extensive signs of inflammation and neurodegeneration...
  4. rvallee

    Long COVID or [PASC]: An Overview of Biological Factors That May Contribute to Persistent Symptoms, Proal & VanElzakker, 2021

    (Paragraphs added for legibility) The novel virus severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) has caused a pandemic of coronavirus disease 2019 (COVID-19). Across the globe, a subset of patients who sustain an acute SARS-CoV-2 infection are developing a wide range of persistent...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    You can say that again. Although not a trade union, here is medicine begrudgingly admitting that maybe millions of reports over several decades may have somehow possibly been true even though they insisted the whole time that there is nothing to it, got angry at those reports even. Not that I...
  6. rvallee

    Clinical trial outcome measures of improvement and recovery in ME/CFS - which ones are useful? Discussion thread

    Political censuses have often been weaponized in history, counting the number of people as they are, now just certain people, is a reliable way to oppress people. If we're not counted when we exist, we sure as hell won't be counted when we die. This is a continuation of the same, just as this...
  7. rvallee

    The COVID Long Haulers: Facing the Cognitive and Physical Consequences, June 22, 2021

    Given that he answered a question from pwME in March of 2020 about this, saying he hoped it wouldn't happen but that they should be prepared for it... Small lies like this go a long way to reducing someone's credibility. Easy lies, easy to dispute.
  8. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Insulting chronically ill people's intelligence: risky but effective. Insulting the intelligence of medical authorities: not sure how risky but very ineffective. Sometimes throwing pocket sand works. It takes very specific circumstances, though.
  9. rvallee

    A general thread on the PACE trial!

    Apparently some wikipedian has made a creative interpretation of the APT in PACE: (General hint: something can't have been "popularized" if it only exists within the confines of a single experiment and is therefore neither popular nor even in use anywhere by anyone)
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    There is a specific context to Sweden that may explain it, the BPS forces have been very loud pushing for cultural illness and everything psychosomatic, so any association is seriously problematic for very real reasons. Given this context, it's understandable, it spells doom for them and I think...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Long Covid May Help Us Understand Other Chronic Diseases Scientists are starting to wonder just how many mysterious ailments may stem from viral or bacterial infections...
  12. rvallee

    BPS attempts at psychologizing Long Covid

    Kings College London still doing their usual bit of pushing for psychosomatic ideology. Edit: Edit 2: looks like KCL is awkwardly finding out that all those tropes about a "militant minority" may have in fact been false, but instead are choosing to just block anyone even asking questions...
  13. rvallee

    DecodeME - UK ME/CFS DNA study underway

    I think that's more of an issue of no one outside the patient community caring very much. Lots of pwME go on a phase where they talk about it a lot, say on social media, but nobody cares, no one comments and they often get nasty comments to shut up about it. Activism usually works but when the...
  14. rvallee

    Characterizing Long COVID in an International Cohort: 7 Months of Symptoms and Their Impact, 2020, Hannah Davis et al

    Something I missed but the person who posted the tweet above is CEO of the Council of Medical Specialty Societies, "representing 45 societies and 800k+ members" according to her bio.
  15. rvallee

    Misdirected attentional focus in functional tremor, 2021, Huys, Edwards et al

    Ah, yes, it only rains when I notice that it rains therefore my noticing of raining is what brings rain. Give me unlimited funding please and thank you. Do these people actually think it's possible to experience tremors without noticing them? Is this what they really believe?
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Even discounting how weak this claim is, Leonard Jason has literally been running a NIH-funded study on this for many years and there are more than a dozen post-XXX syndromes. As in literally named "post-XXX syndrome". Officially, with some being accepted and others arbitrarily rejected but...
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