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  1. rvallee

    ME/CFS services in the United Kingdom

    Activity management sounds like handling kindergartners. It's like they can't help themselves being condescending, even when they have to do pacing, they will give it the most possibly insulting name as if we're just a bunch of toddlers who need our activities managed. And of course it's the...
  2. rvallee

    Development and testing of new vaccines against EBV and other viruses

    The CMV Moderna vaccine appears to be entering phase 3.
  3. rvallee

    (Preprint) Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort by Caspersen et al.

    Moved post Excess risk and clusters of symptoms after COVID-19 in a large Norwegian cohort https://www.medrxiv.org/content/10.1101/2021.10.15.21265038v1 (Paragraphs mine for legibility) We aimed to calculate the excess risk and identify patterns of 22 symptoms up to 12 months after COVID-19...
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A Belgian medical authority has published a report on Long Covid. No idea if it's any good.
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I was unsure about the directness of the MEAction campaign, how it's pretty much prescriptive and may be badly received in a "who are you to tell us how to deal with this?" way but see a lot of praise and thanks in hindsight, pretty much for how simple it is. It's not that simple and it's not...
  6. rvallee

    USA: News from #MEAction

    Copied post I was unsure about the directness of the MEAction campaign, how it's pretty much prescriptive and may be badly received in a "who are you to tell us how to deal with this?" way but see a lot of praise and thanks in hindsight, pretty much for how simple it is. It's not that simple and...
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    In another disappointing reminder of how little interest there is for women's health in medicine, this has been obvious early on, very commonly reported in LC forums, yet barely recorded or studied at all. You'd almost think this is a taboo subject. Long Covid and menopause - the important...
  8. rvallee

    ME/CFS and Long Covid and menstrual cycles

    This post has been copied and following discussion moved from the Long covid in the media thread. In another disappointing reminder of how little interest there is for women's health in medicine, this has been obvious early on, very commonly reported in LC forums, yet barely recorded or...
  9. rvallee

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I think it should be expected that we will have to alert about most of those, I doubt this is a proactive thing. There is especially a lot of archived content out there, things no one will update but will remain published as is unless someone not only points it out but explains it in painful...
  10. rvallee

    Trials on therapist-delivered treatments (for illnesses or symptoms that don't have biomarkers yet) that used objective outcomes as primary endpoints

    What's even more amazing is that it's literally the "effectiveness" of "psychosocial interventions" on those conditions that is cited as evidence for why they are psychosocial, e.g. PACE is commonly cited as having "proved" that ME is psychological since a psychosocial intervention is effective...
  11. rvallee

    Fibromyalgia and ME/CFS: an interoceptive predictive coding model of pain and fatigue expression, 2021, Sharp et al

    If this is the first, how can the introduction list it as having "been implicated"? If this is the first, the citation for the presence of "altered interoception" would be... itself. It's a recursive citation. Because this whole field is a parody of bad science. And many things have been...
  12. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    In a letter. To the Daily Mail. I frankly can't understand the chain of events that would lead to that, it's so absurd and pathetic.
  13. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    The usual message coming out so far has been that most exercise programs are not graded, allow patients to go at their own pace. This is especially important to argue the (false) notion that there is no coercion, since by its nature GET is coercive. Odd that they would argue the opposite here...
  14. rvallee

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    Yup I mentioned that a while ago, there are many large contracts signed off on this evidence base, from apps to training to provisioning services. Those create major legal problems not just for them, but for administrative and legal offices who will have to do damage control. Legal offices don't...
  15. rvallee

    “Convergent validity of the central sensitization inventory and experimental testing of pain sensitivity”, 2021, Holm et al

    In what bizzaro universe are those psychosocial factors? Especially weird to include ability and disability, I guess because they wanted to list 3 things and couldn't come up with a third. Ah. Of course. Label stuff "psychosocial" and you can pretend it is by pointing at the label you just put...
  16. rvallee

    Development and testing of new vaccines against EBV and other viruses

    I am fairly sure this is a sponsored video for a push by Moderna to market their upcoming vaccines, which appear on track to be multi-purpose and probably standardized in the near future, no reason why multi-pathogen immunizations can't be a standard part of preventative medicine. I mostly...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I think the article has already been posted but the author's summary is sometimes a bit more revealing than what editors allow.
  18. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I would trust the process more if it wasn't for blatant BS like this: The NIH is literally funding Jason's mono study. And of course there are several other pathogens already studied known to cause the same issues, on top of course of some bacteria like Lyme but that gets people into near...
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