Studies of other adolescent groups with chronic illnesses - how do these compare?
To have your life put on hold before your identity is fully developed is a hard situation to cope with.
To have a chronic illness that is so poorly understood , and be gaslit adds another level. I am always...
The scale is weird , but perhaps unsurprisingly so
Given the choice I suspect many more would enter " a little worse" making the intervention seem more effective
Interesting.
We did the ATP profile test by Acumen.
I know that it has not been replicated.
However.
It was spooky for its correlation with severity.
It also looked at translocator function ( atp out and atp in)
My daughter was chucking ATP out in bucket loads
With symptoms it can be difficult to sort out ME relevance given the huge heterogenity.
My daughter has had some symptoms which are worsening which prompts a reconsideration.
There is a decline , and it may be that this is simply part and parcel of that, or something that requires medical...
Care of face masks article
https://www.irishtimes.com/life-and-style/health-family/treat-your-face-mask-like-your-underwear-how-to-care-for-your-reusable-face-covering-1.4350568?mode=amp
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