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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Divide and perpetuate. ME/CFS was always going to be not like COVID to enable the denial, and careers to conti ue
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    The use of the labels ME, CFS, ME/CFS

    The main problem we have found is that CFS is conflated with CF. It therefore becomes " fatigue". It has suited BPS brigade to promote the conflation - in paediatrics PEM has until very recently been defined only as "fatigue" ( and for some studies this still pertains) . In many, many papers...
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    The use of the labels ME, CFS, ME/CFS

    As far as I know ME is not diagnosed in Scotland. It's CFS. Increasingly with FND
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    Demographic and health-related factors associated with reduced work functioning in people with moderate [MUPS], 2020, van Tilburg et al

    This needs watching. This linking to SSD @Dx Revision Watch
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    The biology of coronavirus COVID-19 - including research and treatments

    Twitter thread which gives the gist of this
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Thank you
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Perhaps of note is the role of Loades. Her recent papers abound with the same worldview. ECs successor ?
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Redefinition of recovery. Given the failure of treatment methods this was guaranteed at some point. This places it within the psychological/ psychiatric normal definitions. I wonder how young people feel about this and when exactly during the course of " treatment" this version is presented...
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    @MEMarge For info. May be useful for PSP
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    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    Can someone forward to Tymes Trust?
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    Association between quadrivalent human papillomavirus vaccination and selected syndromes with autonomic dysfunction: Hviid et al. 2020

    i will have to read this later. There are a number of girls with primarily OI issues following HPV, but many with CFS too. It's always difficult to know if adverse events are statistically signiifcant or not. The HPV vaccine, has I believe, been modified since first usage. ( i can't remember...
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    Woken by horrible bone pain (?) in leg last night

    Sorry to derail thread . We have found this brand of vitamins to be good as they have little/ no additives and come in eco friendly packaging. https://maddiet.co/product/vegan-vitamin-d3/
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    Psychologically informed physiotherapy as part of a multidisciplinary rehabilitation program for children & adolescents with [FND], 2020, Kasia et al

    Kids. The amount of harm this kind of thing can do should be the subject of a study. :banghead:
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    #MEAction Scotland News

    YOUTUBE VIDEO STARTS AT 41 MINS
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    #MEAction Scotland News

    The petition was continued and a second hearing was yesterday - reframed to bring in potential for ME after COVID Parliamentary TV link - petition hearing starts at 10:12:14
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    Coronavirus - worldwide spread and control

    sorry for the " like". I can't imagine how it feels to be in Florida - please stay safe.
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    Vitamin D receptor is overexpressed in the duodenum of patients with irritable bowel syndrome, 2020, Miura et al

    Would this also affect SODase synthesis and therefore antioxidant levels?
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    Public Each human gut has a viral fingerprint

    Interesting research from Ohio, which may or may not have relevance for ME/ CFS. https://phys.org/news/2020-08-human-gut-viral-fingerprint.html
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    NICE ME/CFS draft guideline - publication dates and delays 2020

    From Twitter
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