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  1. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    I didn't perceive you as demanding; it's mostly that I'm so incredibly frustrated that I can't keep up. The Swedish Covid Association currently has a campaign to show the extent of post-Covid, where they themselves have funded a SIFO survey. 'Sweden' is not trying to find out the extent of the...
  2. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    There is so much going on right now, and I don't have the capacity to keep up with everything. But I don't think I've seen any direct questioning of that particular issue. Unfortunately.
  3. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    I also can't see it in any other way. This comes at a time when there is a lot of talk about the increase in sick leave and the Social Insurance Agency is warning that exhaustion disorder (ED) accounts for the largest increase. ED is Lindsäters' entry point in this study.
  4. The ME Inquiry Report

    Oslo Chronic Fatigue Network

    In my review of the applications to the funders of the Fatigue Study, it becomes very clear that it is not only based on the ideas of the BPS lobby and the Oslo Consortium, but that the study is also their collaborative platform. Please see this thread for more information and links...
  5. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    In my review of the applications to the funders of ’Trötthetsstudien’, it becomes very clear that it is not only based on the ideas of the BPS lobby and the Oslo Consortium, but that the study is also their collaborative platform. Among the funders are both government research councils, the...
  6. The ME Inquiry Report

    Big news from Sweden: Fatigue diagnosis to be disappeared

    I have written about the problematic issue of the media highlighting Lindsäter as an expert when she is actually a lobbyist with a vested interest in having exhaustion disorder removed as a diagnosis. Google translated blogpost...
  7. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    This week, a major patient association for neurological diseases in Sweden, Neuroförbundet, has chosen to promote the Fatigue Study on their social media. Legitimate criticism has been met with incorrect claims about the treatment being tested, comments have been deleted, and comment sections...
  8. The ME Inquiry Report

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    I have summarized what has happened from the time the original article was published until the reply was finally published (a lot of fuss) if anyone is interested. Autotranslated blog...
  9. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    The patient organizations FSI and RME Stockholm have woken up and are now advising their members against participating in the study. FSI...
  10. The ME Inquiry Report

    Oslo Chronic Fatigue Network

    About that. But I don't know what happened behind the scenes before the operations manager emailed and said that she was withdrawing the additional assignment. Whether it was voluntary or not. I have more questions now than when I started looking for information two weeks ago.
  11. The ME Inquiry Report

    Oslo Chronic Fatigue Network

    The past few weeks following the Stockholm region's meeting regarding care for ME patients have been turbulent. I have had significant difficulties obtaining documents related to the meeting. The region claims, for example, that no minutes were taken. Link to blog...
  12. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    Today, I have updated my fact page with information about the pilot study that preceded the Fatigue Study and aimed to test whether the project and treatment were feasible. Among other things, you will see excerpts from the treatment materials used by the participants in the pilot study. Read...
  13. The ME Inquiry Report

    Sweden: ME clinic and Masano Health digital rehab for ME/CFS

    Today we finally received confirmation that the Chancellor of Justice has made a decision. They criticize the Västerbotten region on several points regarding how they handle the release and registration of public documents. An important day for the principle of public access of information. On...
  14. The ME Inquiry Report

    News from Scandinavia

    I have been gathering materials related to Elin Lindsäters ”Fatigue-study” for a while and have now compiled them on a special page on my blog. There you will find information about ethical review and applications for research funding, along with both documents and excerpts from them. Welcome...
  15. The ME Inquiry Report

    Characterization, Treatment, and Long-term Follow-up of Fatigued Patients in Primary Care (iFAS), Lindsäter et al

    I have been gathering materials related to this study for a while and have now compiled them on a special page on my blog. There you will find information about ethical review and applications for research funding, along with both documents and excerpts from them. Welcome to dig in! Google...
  16. The ME Inquiry Report

    Oslo Chronic Fatigue Network

    It now appears that the BPS lobby, the Oslo consortium, and Elin Lindsäter have direct influence over ME care in the Stockholm region - and that the region chooses to label ME as fatigue. Read more at my blog (Google translated)...
  17. The ME Inquiry Report

    News from Scandinavia

    It now appears that the BPS lobby, the Oslo consortium, and Elin Lindsäter have direct influence over ME care in the Stockholm region - and that the region chooses to label ME as fatigue. Read more at my blog (Google translated)...
  18. The ME Inquiry Report

    News from Scandinavia

    I have received a response to my open letter from RME. It can be read in the comments to the open letter on my blog. Google translated link...
  19. The ME Inquiry Report

    News from Scandinavia

    Chronicle by Agnes Arpi in Altinget today about society's betrayal of people with ME and post-COVID, illustrated by the collapse of the National Board of Health and Welfare, which is now proving to be larger than we have known so far. She reports that the Swedish Covid Association has therefore...
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