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Episode 5. Today I tackle the myth of the angry ME patient and follow up with current examples from the Stress Research podcast. To Maran podcast: https://podcasters.spotify.com/pod/show/eremiten/episodes/S2A5-Myten-om-den-arga-patienten-e2oadu6 To the blog where you will find scripts and...

Episode 4. We take a step back in history to try to understand where the problematic image of postcovid and ME, which the Stress Research podcast spreads, comes from. To Maran podcast: https://podcasters.spotify.com/pod/show/eremiten/episodes/S2A4-Kopplingen-till-historien-e2oadbr To the blog...

Episode 3. Today I follow up yesterday's episode on the Stress Research Podcast and examine the misleading image they spread about postcovid and ME. To Maran podcast: https://podcasters.spotify.com/pod/show/eremiten/episodes/S2A3-En-kontroversiell-och-problematisk-bild-av-ME-e2oacek To the...

In episode 2, we take a look at the Stress Research Podcast from Stockholm University and what they say about postcovid and ME. To Maran podcast: https://podcasters.spotify.com/pod/show/eremiten/episodes/Maran-S2A2-Stressforskningspodden-vill-ge-forskare-en-ny-bild-av-ME-e2oac26 To the blog...

The first episode of Maran's second season is here! It is about how bad research has played a big role in us being treated so badly by healthcare. Podcast: https://podcasters.spotify.com/pod/show/eremiten/episodes/Maran-S2A1-Historielshet-ett-hot-mot-patientskerheten-e2oaaeq To the blog where...

The BPS lobby has shifted gears in Sweden in the past year and now we suddenly have received new national guidelines from Socialstyrelsen, which recommends GET. How did we end up here? In my new season of the podcast Maran, I look for answers to this. I've made a new thread for Season 2 here...

I've made a new thread about my new season of the podcast Maran. Socialstyrelsens new guidelines is part of this season. https://www.s4me.info/threads/maran-season-2-how-did-we-end-up-here.40230/

Dissatisfaction with the Swedish National Board of Health and Welfare's new knowledge support for post-infectious diseases such as ME and postcovid is simmering. Both healthcare professionals working with these diagnoses, researchers, and the patients themselves are raising serious concerns...

I can't see that this has been shared. It is Swedish Agency for Health Technology Assessment and Assessment of Social Services (Statens beredning för medicinsk och social utvärdering, SBU) that have compiled the scientific basis on which the National Board of Health and Welfare bases its report...

Yesterday, two patient organizations published posts about that the Ameliekliniken will close. Brief blogpost, Google translated: https://mitteremitage-wordpress-com.translate.goog/2024/04/10/ameliekliniken-stanger/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

15 (Bonus) How can we get better care and research? I had to make one more episode and answer a very good question from an facebook group (where I and my texts are banned). The question is: How should all ME sufferers and patient representatives act together for better care and research? Blog...

Lokal newspaper writes about the ongoing investigation. Paywalled article: https://www.vk.se/2024-03-17/brottsmisstanke-aklagare-utreder-regionens-me-projekt-d9ca1 Short summery by me (Google translated)...

14 Time to tie the knot End of season one with summary and final reflections. Blog post (Google translated): https://mitteremitage-wordpress-com.translate.goog/2024/03/20/maran-s1a14-dags-att-knyta-ihop-sacken/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp The podcast link in the...

13 Are there any collaboration partners? In the thirteenth episode, I go through the other participants who are mentioned in relation to the Kamprad application with the goal of understanding if any of them can take over the fund management after Axelsson resigned from Karolinska hospital. I...

12 Who is the main applicant? In episode 12, I return to analyzing the content of the application to the Kamprad Family Foundation. The focus is on the practical details of the study, such as who is the main applicant for the study and why the fund administration needs to move to Uppsala...

11 Where does the unpublished data come from? In episode 11 I attempt to derive what research the unpublished data comes from that Axelsson reports at the two lectures I went through in the previous section. I note that it is difficult to understand the origin of the unpublished data and that...

10 Does Axelsson differentiate between ME and POTS? In my tenth episode, I work though and analyze two lectures with Axelsson that were given in the context of ME and which are available via the internet. I note that Axelsson goes from equating ME and POTS in 2019 to including a number of...

9 What does Axelsson really mean by ME? Episode 9 is a review of Axelsson's inconsistent use of the diagnosis designation ME. I note that there are signs that indicate that Axelsson in fact believes that ME is the same as autonomic dysfunction, but that his way of reasoning does not match the...

8 What is covered by previous research? Part 2 In episode 8, I go through some articles based on a previous POTS study in which Axelsson was a co-researcher, and which he refers to in two of the applications I reviewed in the previous episode. I note that previous studies and scientific...

7 What is covered by previous research? Part 1 In the seventh episode, I go through Axelsson's approved ethics review applications to see if the development of his method fits within any of these. I note that there are no published results from the studies, but that the diagnostic tool could be...