6 What happened when the cameras went off?
In my sixth episode, I make a historical retrospective and summarize what happened to Axelsson's research after he was confronted with information about the lack of valid research permits in the television program ”Vetenskapens värld” 2020. I state...
5 What is the difference between healthcare and research?
In episode 5, I do a review of how relevant instances describe the difference between healthcare and research. I take examples from the investigation of Macchiarini and the ME-clinic in the region of Västerbotten. I state that methodical...
4 Is there evidence or not?
In the fourth episode, I take a closer look at how Axelsson describes the state of the evidence for the treatment he wants to test in the Kamprad study (including Valganciclovir) compared to how he talks about it with the journalists in the media review in the fall...
3 ME or paraviral disease?
In the third episode, I go through how Axelsson uses the terms ME and paraviral disease in the application to Familjen Kamprad's foundation in the spring of 2022 compared to in contact with media in the fall of 2023. I note that Axelsson equates ME and paraviral...
2 The Kamprad family foundation finances research on ME
I have got hold of the grant application to the Kamprad foundation and am working through the content.
Podcast:
https://podcasters.spotify.com/pod/show/eremiten/episodes/S1A2-Familjen-Kamprads-stiftelse-finansierar-forskning-om-ME-e2gk6al...
1 Why is it important for me to review care and research?
In the first episode, I talk about the background of the laws and regulations around research, that vulnerable groups have been exploited in unethical experiments and that it is not only the research itself that has laws and regulations...
In the media's review of the physician and researcher Jonas Axelsson and the private healthcare company Ameliekliniken during the fall and winter of 2023, it emerged that Axelsson has received a 5 million (SEK) grant from the IKEA founder's (Kamprad) foundation for research on ME.
I have dug...
Good News! Today Läkartidningen reports that the police/prosecutor have opened an investigation for suspected crime against the ”law of ethics” (etikprövningslagen).
”In October, a project on digital ME rehabilitation in Region Västerbotten was prosecuted because it lacked an ethics review...
Läkartidningen also reports about ÖNEPs decision.
Swedish:
https://lakartidningen.se/aktuellt/nyheter/2023/11/onep-anmaler-vasterbotten-efter-forskningsprojekt-utan-tillstand/
English (Google translate)...
One more paywalled news article:
Folkbladet: Regionen saknade tillstånd för forskning om ME-sjuka – ärendet går till åklagare
https://www.folkbladet.nu/2023-11-02/regionen-saknade-tillstand-for-forskning-om-me-sjuka-arendet-gar-till-aklagare-7c958
The Ethics Review Appeals Board (Överklagandenämnden för etikprövning ÖNEP) decided to press charges against the Västerbotten ME project ”Tänk rätt från början”. They state that the project was research without ethical permission - not healthcare. The case will now be further investigated by...
It seems to me that they want to skip the diagnosis of utmattningssyndrom altogether and instead just talk about and treat chronic fatigue. Look for similarities between diagnoses rather than differences. What you quote is about the Swedish diagnosis of utmattningssyndrom, for fatigue I think...
On September 18, a seminar on Exhaustion disorder and chronic fatigue was held at Karolinska Institutet Stockholm. ”Dags att tänka om kring utmattningssyndrom: Kan svår trötthet ses som en transdiagnostisk symtomdimension?” (Time to rethink Exhaustion disorder: Can severe fatigue be seen as a...
I discovered that the Karolinska Institutet has also published the news about "new research" on its website. It is the institution where consortium member Mats Lekander works that published it...
Report on Swedish radio that a new study (Knoop) showed positive results for CBT in post-covid. It also appears that the region of Stockholm is planning a similar study for people with fatigue.
”New Dutch study shows that cognitive behavioral therapy, CBT, can be effective in reducing severe...
I have posted a blogpost about the false claims of Stockholm university:
Google translated:
https://mitteremitage-wordpress-com.translate.goog/2023/10/01/universitet-sprider-falska-uppgifter/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp
Good News! The Chancellor of Justice has started an inspection. :party:
Read more in my blog post (Google translated):
https://mitteremitage-wordpress-com.translate.goog/2023/03/21/justitiekanslern-inleder-tillsyn/?_x_tr_sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp
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