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  1. AliceLily

    My experience of Covid

    Thanks Mij, it's interesting to see your timescales. I just called the doctors surgery and I think I will just wait until my telephone consult with my GP tomorrow. I think I might too late for antivirals. I would like to have antibiotics on standby for if things deteriorate with a heavy chest...
  2. AliceLily

    My experience of Covid

    Hope it is ok to have a thread for my ramblings. I'd just like to record how things go for me because I am a very at risk person for Covid. To start I am not up to date with vaccination. I would have been due early December for my next, so I don't think I am well protected and could do this...
  3. AliceLily

    Covid-19 vaccination experiences

    I tested positive for Covid this morning. Quite a shock, my first time. I've had a very sore throat for 3-4 days and sinuses draining and I have noticed I feel really tired when walking. I hope my lungs will hold up in a weeks time.
  4. AliceLily

    C-reactive protein, CRP

    I was able to find 5 results for CRP. 2002 very severe ME: it just said <3mg/l 2012 severe ME: 1mg/l 2022 moderate ME: 37 (I had a urinary infection when this was taken) 2023 moderate ME: 1mg/l 2024 moderate ME: 2mg/l (Could be due to some throat/thyroid problems this year?) Looking back...
  5. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    @obeat The hot flushes I experienced at menopause were really severe, it was more a sudden burn up. It got quite scary for me for a time. It was different though from the ME poisoned feeling. It sounds like the poisoned feeling could be due to a neuro-toxin though? Aside from that I remember...
  6. AliceLily

    The Concept of ME/CFS, 2024, Edwards

    I'm interested to find out more of her thinking on this. If she hasn't already she will have to take into account that there will be moderate and mild patients whose horizontal hours will be pacing hours, not due to severity but to keep from deteriorating to a severer level. I will check to...
  7. AliceLily

    The Concept of ME/CFS, 2024, Edwards

    This would be more my hours as well, some days less horizontal. I'm always looking at my day and the whole week to make sure I am not overdoing. The difference for me now that I am moderate compared to my severer years is that my upright and horizontal hours are more to keep at moderate level...
  8. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    @forestglip I am just guessing it could have contributed to the nausea. There could be other mechanisms causing the nausea. I use to think the poisoned feeling was some kind of neuro-toxin (if there is such a thing?).
  9. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    My memory might be off here because I have to go back 40 odd years to remember what it felt like to have a hangover after being sick from too much alcohol. I think the stomach nausea of ME felt similar to what your stomach feels like with a next day hangover?
  10. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I remember one particular day when very severe where I was shocked by the feeling in my bloodstream. I could feel something travelling through my blood vessels that should not have been there. I never felt that again. You just don't feel the insides of your bloodstream, but I did that day.
  11. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I would separate them. There was something very toxic in my system. It really did feel like you had swallowed a poison and it reached every cell in your body. I think it contributed to my stomach nausea which I had nearly daily for years.
  12. AliceLily

    The Concept of ME/CFS, 2024, Edwards

    Lying down flat has been essential for me. When I look back to my many years of severer ME I find it utterly shocking the amount of very severe symptoms I was having to deal with. I think there could be a valid problem with understanding how severe each person actually is on the scale of...
  13. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Quite alright @Sasha I was overwhelmed because I wanted to post yesterday but cognitively not up to it.
  14. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I never drank alcohol in my severest years of ME and when I have since I have only sipped. I feel dehydrated with the ME so I do have an aversion to drinking more than sips because I already feel dehydrated. I felt a bit overwhelmed yesterday when reading posts when 'poisoned' was introduced to...
  15. AliceLily

    Poll: In pwME that report worsened sleep following exertion/excessive activity (or during PEM) what happens to your sleep during an acute infection?

    Very hard to answer this poll. I never caught a cold in my very severe years. In the severe years I only remember a cold keeping me awake nearly all night due to the miserableness of blowing the nose all the time, sneezing and feeling the usual roughed-up-ness for the first few days. I wish I...
  16. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I'd love to sip on a few old favourite' s from my youth again. Drambuie, maybe try a sherry again, kahlua etc.
  17. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    A friend of mine. I had mentioned often to her that every now and again I get the urge to have a wine with a meal but that I am so intolerant that I don't buy any. So she bought me one to have a few sips.
  18. AliceLily

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I voted 'worsened hangover effect'. From memory, I feel more dehydrated. I was given a bottle of wine at Christmas last year and it is still sitting in the fridge over three quarters fill. I've only had 3-4 sips with a meal about 4 times and then lost all interest.
  19. AliceLily

    The Concept of ME/CFS

    It can be used as a slight against us as well.
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