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I have just received this reply from the email that I sent to pressoffice@cochrane.org "Dear Andy, Thank you for getting in touch. The update is currently underway and we are hoping to publish the protocol for consultation in the coming months. Unfortunately I am not in a position to be more...

Abstract Intensive Short-Term Psychodynamic Therapy (ISTDP) has demonstrated promising evidence for the treatment of Functional Neurological Disorders (FND) including functional seizures. This paper aimed to further examine the therapeutic effects of a 3-session course of this treatment...

Abstract Background COVID-19 is associated with a dysregulated immune response but it is unclear how immune dysfunction contributes to the chronic morbidity persisting in many COVID-19 patients during convalescence (long COVID). Methods We assessed phenotypical and functional changes of...

Full title: Physical health of Post-9/11 U.S. Military veterans in the context of Healthy People 2020 targeted topic areas: Results from the Comparative Health Assessment Interview Research Study Abstract Large-scale epidemiological studies suggest that veterans may have poorer physical health...

Thread for UK: Action for ME: Media Guidelines for reporting on M.E.

"We’re delighted to launch our media guidelines to better inform media stories on Myalgic Encephalomyelitis (M.E.) For too long, people with Myalgic Encephalomyelitis (M.E.) have struggled to get their condition diagnosed, understood, and acknowledged. .... We want to work with journalists to...

This thesis is from a student, Sanne Rodenburg,in the Netherlands, and so I would assume that English is a second language. I would therefore assume that the intention of using "normal activity" in that description was to attempt to describe how PEM can potentially be triggered by any possible...

From https://www.parliament.uk/about/mps-and-lords/members/apg/rules-on-appgs/ 21. Groups must be transparent about their nature, membership and funding. In particular, they must avoid presenting themselves in a way which could lead to confusion with Select Committees. They must make full...

And I'm suspicious when the only results reported by patients, at least on that figure, were "No effect" or "Improved". 91 patients and nobody at all reported worsening of any measure? Again, hopefully the preprint explains this.

"Resolved" is not the same as "improved", so I hope that the preprint does not equate the two things as equal as well.

The COVI workshop on Long Covid: a brief summary On 9 March, a workshop on Long Covid was held in the European parliament. Various invited experts and Members of Parliament highlighted a link between ME/CFS and Long Covid. https://europeanmecoalition.com/the-covi-workshop-on-long-covid/

"IACFS/ME Public Business Meeting March 31, 2023, at 2 PM EST (New York City, USA time) Zoom Meeting Link: https://stonybrook.zoom.us/j/96941533324?pwd=WkF4U3VQOXpEckJLb2xmZGhDYmVCZz09 Purpose: Educate and update members and the public about IACFS/ME's status and activities Topics: Board...

"Endometriosis is excruciating. But the medical scale for pain is tragically flawed, leaving women in particular to suffer On a scale of zero to 10, with zero being no pain at all and 10 being the worst pain imaginable, how is your pain? Because pain is impossible to diagnose objectively...

Abstract Objective The heterogeneous conceptualizations and classifications of persistent and troublesome physical symptoms impede their adequate clinical management. Functional somatic disorders (FSD) is a recently suggested interface concept that is aetiologically neutral and allows for...

Abstract Some survivors of humidifier disinfectants (HDs) complain of chronic, inexplicable fatigue, and post-exertional malaise (PEM). Two-day cardiopulmonary exercise tests (CPETs) performed 24 hours apart (2-day CPET protocol) are increasingly employed to evaluate PEM and related...

What the heck, I had time to waste so I've sent an email to both accounts requesting an update.

So pesky patients should be deflected into, most likely, pointlessly emailing whoever controls the IAG account, while people they really care about should actually email Cochrane. I don't understand quite what is so difficult about giving an update statement, even if it is one that is admitting...

The paper says this about the questionnaire. "A PEM questionnaire (Fig. 1) was administered online to people who were seeking clinical care for Long COVID at Bateman Horne Center. The PEM questionnaire was originally developed for clinical use by Bateman Horne Center providers and was used in a...

"Thastum et al. developed a treatment strategy in chronic post-concussion syndrome applying the idea of negative illness perception and maladaptive illness behaviour intended to break the vicious circles of excessive rest due to fatigue by gradually changing attitudes and slowly increasing...

Background Fatigue is a highly prevalent and debilitating symptom among patients in the chronic phase of aneurysmal subarachnoid haemorrhage (aSAH) with no identified effective treatment. Cognitive therapy has been shown to have moderate effects on fatigue. Delineating the coping strategies used...