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"Who We Are We are built from various backgrounds. We believe complex problems benefit from diversity – diverse cognitive repertoires, technical skills and cultural backgrounds. PWLE is at the heart of the Network, helping to shape our vision and mission. The term "Web" refers to the patient...

Wellbeing of Women say "From period problems and starting a family, to menopause and gynaecological cancers, we are here for women’s gynaecological and reproductive health." on their website, https://www.wellbeingofwomen.org.uk/about-us/, so presumably ME/CFS wouldn't necessarily fit with that.

"The Petitions Committee – a cross-party group of MPs who consider petitions started on petition.parliament.uk – has scheduled a debate in Parliament on two petitions calling for increased financial support for disabled people, one or both of which you may have signed: Make people on...

Abstract Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients’ experiences, help to explore barriers and facilitators to their compliance/adherence to assessment and treatment methods, bring meaningful outcomes that could meet their...

Summary Background “Exercise-induced gastrointestinal syndrome” refers to disturbances of gastrointestinal integrity and function that are common features of strenuous exercise. Aim To systematically review the literature to establish the impact of acute exercise on markers of gastrointestinal...

Full title: Reliability of pathophysiological markers reflective of exercise-induced gastrointestinal syndrome (EIGS) in response to 2-h high-intensity interval exercise: A comprehensive methodological efficacy exploration The study aimed to determine the test-retest reliability of...

"March 11 marks 3 years since WHO declared COVID-19 to be a pandemic. While the world is determined to move on from the acute phase, at least 65 million people are estimated to struggle with long COVID, a debilitating post-infection multisystem condition with common symptoms of fatigue...

Introduction Functional neurological disorders (FNDs) are a common cause of neurology consultations.1 Dissociative seizures, motor and cognitive disorders are the main phenotypes. Diagnosis is made on positive terms: signs of inconsistency, incongruence and variability of physical signs with...

"‘Functional disorders’ are described as resulting from pathological changes in bodily ‘function’ rather than ‘structure’. This conceptualisation is thought to offer an explanation as to why standard medical investigations are commonly unremarkable. Other conditions that fall under the umbrella...

In the UK alone, there are an estimated 1.5 million people experiencing symptoms persisting over a year after infection with SARS-CoV-2. 72% report that their symptoms interfere with daily function and 15% (or around 340 000) report that their daily function is ‘limited a lot’.1 Post-COVID-19...

Abstract As we adapt to SARS-CoV-2, it has become apparent that the acute illness is not the only threat from this virus. Long COVID has emerged as a potentially disabling condition with multiple varied symptoms. We propose that querying patients about their sleep may allow for the assessment...

Abstract Patients suffering from Long-COVID syndrome experience a variety of different symptoms on a physical, but also on a psychological and social level. Previous psychiatric conditions such as depression and anxiety have been identified as separate risk factors for developing Long-COVID...

This has been mentioned elsewhere on the forum previously but is worth a thread of it's own. Additional 'interesting' info from the document. "Acknowledgements Dr James N. Baraniuk would like to gratefully acknowledge Dr Craig N. Sawchuk and Dr Dedra Buchwald, previous contributors to this...

Last reviewed: 10 Feb 2023, Last updated: 19 Jan 2022 Summary Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be distinguished from medical and psychiatric conditions in the differential diagnosis of fatigue by the presence of debilitating fatigue for more than 6 months...

Abstract Myalgic encephalitis/chronic fatigue syndrome, an intractable disease characterized by profound fatigue, sleep disturbance, cognitive impairment, and orthostatic intolerance, among other features, often occurs after infectious episodes. Patients experience various types of chronic...

ONS Covid infection survey paused after 3 years, leaving no official method for tracking virus "The [UK] government’s Covid infection survey – regarded worldwide as the “gold standard” for surveillance of the virus – is being paused for several months. The weekly survey published by the Office...

How the brain senses a flu infection — and orders the body to rest "A case of influenza can make even the toughest people take to their beds and lose their appetites. Now, scientists have identified neurons in mice that notify the brain of a flu infection, triggering decreases in movement...

Abstract Pathogen infection causes a stereotyped state of sickness that involves neuronally orchestrated behavioural and physiological changes1,2. On infection, immune cells release a ‘storm’ of cytokines and other mediators, many of which are detected by neurons3,4; yet, the responding neural...

Background: Post-COVID-19 exercise intolerance is poorly understood. Cardiopulmonary exercise testing (CPET) can identify the underlying exercise limitations. Objectives: To evaluate the source and magnitude of exercise intolerance in post-COVID-19 subjects. Methods: Cohort study assessing...

Abstract Learning objectives: • Develop and implement treatment plans for children and adolescents with functional neurological disorder (FND)• Outline a plan to increase awareness and standardize the care for patients with FND using evidence-based interventions. Abstract: Functional...