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Background and purpose: The coronavirus disease 2019 (COVID-19) has been associated with olfactory dysfunction. The persistent symptoms of anosmia or hyposmia were associated in previous studies with the development of memory impairment and mood disturbances. We aimed to investigate the...

Background: The long-term sequelae after COVID-19 constitute a challenge to public health and increased knowledge is needed. We investigated the prevalence of self-reported persistent symptoms and reduced health-related quality of life (HRQoL) in relation to functional exercise capacity, 6...

Trial By Error: An Upcoming “Biopsychosocial” Long Covid Conference in Finland "What is it with the health care establishments in northern Europe? Why are they so devoted to non-evidence-based approaches to treating serious medical conditions? Why do they trust arguably fraudulent research...

Yeah, but then their argument would be that structural changes prove the validity of the FND diagnosis. It doesn't have to make sense, they just need to repeat it often enough.

The first suggestion of it that I spotted on this thread, Coronavirus - worldwide spread and control, from Jan 26th 2020.

Abstract Paroxysmal exercise-induced movement disorders may be caused by energy metabolism disorders, such as Glut 1 deficiency, pyruvate dehydrogenase deficiency or mitochondrial respiratory chain disorders. A 4-year-old boy with a history of febrile seizures presented with paroxysmal...

It seems that abnormal functioning affected their proofreading.

Highlights We report new evidence of high rates of autistic traits in a group with FND. 40% of participants scored positive on the AQ-10. 40% of patients also scored positive for alexithymia. Abstract Introduction In a cohort of adults with Functional Neurological Disorder (FND), we aim to...

Abstract Background Irritable bowel syndrome (IBS) is characterized as a central sensitization syndrome (CSS), a group of conditions including fibromyalgia, chronic fatigue, and restless leg syndrome (RLS) among others with frequent comorbidities of anxiety, depression, and chemical...

Using a poor version of the Fukuda criteria.

Abstract Introduction. Discrepancies exist regarding the clinical course and prognostic factors for post-COVID fatigue. Therefore, our aim was to assess the timely course of fatigue and its possible predictors in patients previously hospitalised due to SARS-CoV-2 infection. Material and...

"In the present study, we derive dynamic single-case networks from the ESM data of 31 persistently fatigued young people living with a chronic condition (i.e., Q-Fever Fatigue Syndrome (QFS), Juvenile Idiopathic Arthritis (JIA), CFS/ME and long-COVID). Conceptualizing fatigue as a generic...

Full title: Dynamic modeling of experience sampling methodology data reveals large heterogeneity in biopsychosocial factors associated with persistent fatigue in young people living with a chronic condition Highlights • Individual dynamic single-case networks complement group-level research. •...

"#pwme we are submitting a funding proposal for taVNS and are trying to identify what inflammatory panel to use. Two helpful studies - Trianinos et al and Rodriguez et al - any thoughts?" I'm assuming taVNS is Transcutaneous Auricular Vagus Nerve Stimulation.

Where do you think they should be? I would imagine that, just like the ME community, the vast majority are trying to deal with the devastating effects of their condition, while the few who are able to engage in advocacy are trying to do what they can with the limited amount of energy available...

Author is Peter Wark, Conjoint Professor, School of Medicine and Public Health, University of Newcastle, AU.

Engaging with the WHO over disability health equity "Following our letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with officials to discuss our recommendations. This was a positive...

Blog: A visit to the UK Biocentre, https://www.decodeme.org.uk/a-visit-to-the-uk-biocentre/ "Claire Tripp – Patient and Public Involvement Team Member Last month, I visited the UK Biocentre in Milton Keynes, along with Prof Chris Ponting and Dr Diana Garcia, the DecodeME project manager at the...

Always a good look, blaming chronically ill advocates for something that, as far as we know, he himself hasn't done himself.

"A key challenge with these interventions (Pilates, resistance exercises, and neuromodulation) relates to their scalability, which is particularly important when considering the scale of the public health burden in a context of limited health service capacity. However, these therapies were not...