Search results

This is what I don't get. They're using 0.03 even though it's not a statistically significant finding but I don't see them explaining that decision anywhere, unless I missed it.

of course! I often forget I've written about something until I look for it.

With the LP, at least, wouldn't any fluctuations happen because you stopped doing the LP and saying "STOP!" effectively and properly, and instead began "doing" ME again?

It might be the one I wrote about a few years ago in this post on DNRS. In that case, it was Canada, but McMasters University.

DNRS is the Dynamic Neural Retraining System, created by someone named Annie Hopper. It has the same kinds of components as many of the others, as far as I know--positive affirmations, breathing/relaxation exercises, visualizations, etc. It's good they're including some objective outcomes.

Moved posts They have a new economic analysis of the trial out. They say the intervention is cost-effective. In a tweet the main author (Nielsen) wrote: "It is possible to have a treatment that may not be significantly more clinically effective, but has a high probability of being more cost...

yes, it was conducted to prove that what they were already doing throughout the 90s and what they were already advising the NHS and insurance companies was "evidence-based"

yes, that's quite telling.

yes, that strategy was very effective in making the data disappear.

I have called it "research misconduct" on the part of the PACE authors for them to completely "disappear" the FINE findings by not mentioning them in their own papers after years of promoting htem a PACE's "sister study." And yes, failing to provide an accurate account of the background in your...

I expressed sympathy for their frustration, not for their manner of expressing it. But I've certainly said things I wish I could un-say, that I meant in the heat of the moment but didn't mean in the larger sense or upon reflection and after internal debate with the better parts of my nature.

The lead investigator of FINE was telling people that ME or CFS was like really bad jet lag. Since that's how those providing the care were essentially indoctrinated, I have some sympathy for some of their frustration at not seeing people improve. It doesn't justify hostility, obviously, but...

Yes, they learned that a Dutch trial or trials had null results for it, so they decided it didn't accurately reflect "fatigue"--just as Knoop argued recently about why their CBT and Long Covid study didn't report their null actigraphy findings. But in correspondence regarding the protocol, the...

it didn't exclude the studies (PACE had "objective outcomes"). It excluded the objective outcomes from the studies--a change with the new protocol developed for the revised exercise guidelines.

we had a rehab trial for severe patients, or at least homebound ones, called FINE. The PACE team kept touting it as their "sister trial"--but the PACE papers didn't mention it. It published null results for its subjective outcomes in 2010, a year before PACE--so PACE disappeared it, even though...

I hadn't thought about it that way! In general, I'd say it's probably better not to launch a crowdfunding at exactly the same time the country is launching a trade war with the world, the markets are crashing, and consumer confidence is plummeting!!

yes, it's sad. I know.

https://virology.ws/2025/04/14/trial-by-error-my-visits-with-alem-matthees-2025/

Not really. I've tried. Certainly there haven't been academic streams. And that idea is of course totally out the window, given what's going on currently in the U.S. I would guess there's some private wealthy funder or funders out there who would love to cover the full amount with a hands-off...

That's actually from his mum, Helen. Although she likely tells him she's doing that. I very much appreciate their support.