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    Mind and Body in the Guardian again

    And of course Trudie Chalder was a key player in the major trials for both of these--CODES was CBT for dissociative seizures, and ACTIB for IBS. I posted a lot about both of them.
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    United Kingdom: News from #There for ME

    As far as I can tell, this has been haphazard tracking--individuals finding out what their local NHS trusts are doing and passing on the info, and the ME Association sending letters to individual trusts requesting changes, sometimes to some effect and other times I gather not. I certainly don't...
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    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    Their response is also non-responsive to the point I had raised, which was that they didn't point out in key sections that the REGAIN sample were post-hospitalized patients. REGAIN itself was forced to append a correction--not because they didn't mention that at all but because it wasn't...
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    well, not that much older than me! I think the point here is that their goal is specifically to create havoc at all major research universities, which they view as the academic arm of the deep state.
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    The idea, which was in Project 2025, was that these indirect costs can help support university initiatives like DEI. Therefore, it's best to slash them. That seems to be the motivation.
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Quote from NYTimes story (I cancelled my W Post subscription): '“I think it’s going to destroy research universities in the short term, and I don’t know after that,” said Dr. David A. Baltrus, a University of Arizona associate professor whose lab is developing antibiotics for crops. “They rely...
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    There are reasonable debates about how "infrastructure" should be funded. It is insane to cause such havoc and chaos and major financial damage at every US research university, including mine, at one fell swoop in this manner, depriving them of many millions in operating costs, starting...
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    Can we influence trial and review methodology, eg open-label trials with subjective primary outcomes?

    An open letter, like the PACE letter to The Lancet, was on the list of things I was thinking might be a good idea.
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    Stat News: NIH must address the twin crises of long Covid and ME/CFS — together

    I wouldn't necessarily make this assumption.
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    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    An anthro professor at Berkeley and I were going to pull together a grant application for the NSF for the Science and Technology Studies/Med Anthro sections on these issues. After the election, I said let's drop the idea--no point in spending huge amount of time for grants under this government...
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Thanks. It should help get the word out to a US audience and people with Long Covid.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Yes, he's a smart reporter. He'd contacted me on Twitter last week and I responded, but didn't hear back further.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Jo, can you explain this last clause of the first paragraph? What is the title of the letter? And what does the parenthetical mean?
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    yes, I remember that very well!! and I think the true state of affairs is that statisticians are all over the map, like everyone else.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    This is assuming Prof White, Chalder, etc, were somehow experts in distinguishing between depression and what they view as chronic fatigue. I haven't seen much evidence to suggest that is the case.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    this is from the brief intervention study from Norway, in which the overall benefits did not reach the threshold for clinical significance but they claimed success anyway by focusing on changes within the intervention group. I wrote about that study yesterday.
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