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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    this seems like something of a categorical overstatement. The statisticians I know, at least those working in public health/medicine, certainly understand about blinding.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Old Woody Allen joke. "My brother's crazy, he thinks he's a chicken." "Oh, no, have you taken him to the psychiatrist?" "No, we need the eggs."
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    true, but given that there is solid evidence now of lack of responsiveness among children, it would have been surprising to me if the new review had not made sure to include it.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    The Common Mental Disorders section of cochrane grabbed CFS back when, so that's how it ended up there.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Given that this was supposed to be a new review, there is no excuse for excluding MAGENTA on the grounds that the Larun review was just adults. The new protocol presumably would have included pediatric studies.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Atle Freiheim does stand-up comedy as a side line to his public health responsibilities, apparently. Maybe some of his answers need to be viewed in that light.
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    Mind and Body in the Guardian again

    I think the term "functional" was useful in the sense that it also means "having to do with function," so on its face it comes across as neutral and would be neutral if that's how it were used by clinicians. As Jo says, that's not how it's generally understood. "Functional" has more or less...
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I got a beautiful carpet in Baku, Azerbaijan, that is very big, but probably not big enough.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    i understand why you might feel this way, but I don't share this view. It's always possible to argue that those on the inside trying to make change should have done more and left sooner or whatever. I think she accepted an impossible task and has done her best to do it in very, very difficult...
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    It was a while ago so memory is fuzzy. I raised the entire design as a problem, and he more or less indicated that the notion of discounting all such studies was a non-starter.
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    News from the USA, United States of America

    I wouldn't expect any government-funded biomedical news out of US now that everything is halted indefinitely. I just got personally hit by this--not related at all to public health or ME but for another side project I've been involved with on media diversity. I've worked for 25 years with an...
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    Mind and Body in the Guardian again

    It repeats this lie: "FND is the second most common reason to see a neurologist, after headache." This has been debunked in the letter I organized to the journal NeuroImage: Clinical (co-signed by Jo, among others): https://pmc.ncbi.nlm.nih.gov/articles/PMC10864787/
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I tweeted or rather BlueSkyed something along these lines. Hilda responded: "Big question. An answer wouldn't fit in this little box." Pehaps more will be revealed in time.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    apparently there were several rounds, so Cochrane did provide responses to early drafts of the protocol. Just they didn't respond to the last draft, which was sent in almost 2 years ago now.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I tried to make this argument very strongly when I met with David Tovey years ago. I was not able to convince him.
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    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    https://virology.ws/2025/01/24/trial-by-error-cochranes-decision-on-exercise-review-is-hurting-patients-says-longtime-insider/
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