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  1. Sly Saint

    USA Stat News: The NIH has poured $1 billion into long Covid research — with little to show for it

    https://www.statnews.com/2023/04/20/long-covid-nih-billion/
  2. Sly Saint

    Exercise Intolerance Associated with Impaired Oxygen Extraction in Patients with Long COVID 2023 Norweg et al

    quick search and there are at least 9 other threads on cpet studies for long covid, including a couple of reviews. I haven't checked to see what their findings were but I doubt this is one of the first to raise this issue.
  3. Sly Saint

    Relative Energy Deficiency in Sport (RED-S)

    Merged thread full article here https://www.runnersworld.com/uk/health/a33589189/red-s-relative-energy-deficiency-running/
  4. Sly Saint

    The role of mitochondria in Parkinson's disease

    Medical Research Foundation https://www.medicalresearchfoundation.org.uk/news/the-role-of-mitochondria-in-parkinsons-disease
  5. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    and yet the MEA splits the two ie energy management, pacing, implying they are different, which only adds to the confusion. https://www.s4me.info/threads/pacing-for-people-with-m-e-action-for-me-booklet-revised-and-updated-january-2020.13320/page-7#post-470888
  6. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    Myalgic Encephalomyelitis (ME). Criteria and clinical guidelines 2014. http://web.archive.org/web/20150923181011/http://www.axfordsabode.org.uk/me/mecrit2014.htm an interesting read.
  7. Sly Saint

    UK - Energy - suppliers, costs, grants, meters etc

    Now energy companies make you pay to have your faulty smart meter repaired: Customers left in the dark as devices go dumb Now energy companies make you pay to have your faulty smart meter repaired: Customers left in the dark as devices go dumb (msn.com)
  8. Sly Saint

    The impact of fibromyalgia syndrome on obstructive sleep apnea syndrome in terms of pain threshold, daytime symptoms, anxiety, depression, disease sev

    The impact of fibromyalgia syndrome on obstructive sleep apnea syndrome in terms of pain threshold, daytime symptoms, anxiety, depression, disease severity, and sleep quality: a polysomnographic study Abstract Background Current studies have focused on the association of fibromyalgia syndrome...
  9. Sly Saint

    United Kingdom: Derbyshire Chronic Fatigue Syndrome (CFS/ME) Service

    job ad https://www.nhsjobs.com/job/UK/Derbyshire/Derby/University_Hospitals_Derby_Burton_NHS_Foundation_Trust/Physiotherapy_Occupational_Therapy/Physiotherapy_Occupational_Therapy-v5092684
  10. Sly Saint

    Australia: News from Griffith University, National Centre for Neuroimmunology and Emerging Diseases (NCNED)

    Largest medical research grant to help ME/CFS and Long COVID research https://news.griffith.edu.au/2023/04/19/largest-medical-research-grant-to-help-me-cfs-and-long-covid-research/
  11. Sly Saint

    UK ME Association documents on pacing

    Moved posts In light of recent discussions on 'pacing' and 'energy management', here https://www.s4me.info/threads/bias-misleading-information-and-lack-of-respect-for-alternative-views-have-distorted-perceptions-of-myalgic-encephalomyelitis-cfs-2017-goudsmit.32906/#post-470664 I've had a look...
  12. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    that's already happening as we are included in MUS,PPS,LTCs https://www.s4me.info/threads/nhs-talk-plus-video-modules-for-people-with-long-term-conditions-ltc.32893/ (personally I would prefer 'energy management' which ties in with Jasons 'Energy envelope' theory; although its not perfect it...
  13. Sly Saint

    RECAST: Study protocol ,..,observational study for the understanding the increased REsilience of Children compared to Adults in SARS-CoV-2 infecTion

    RECAST: Study protocol for an observational study for the understanding of the increased REsilience of Children compared to Adults in SARS-CoV-2 infecTion Abstract Introduction The SARS-CoV-2 pandemic remains a threat to public health. Soon after its outbreak, it became apparent that children...
  14. Sly Saint

    Persisting and New Onset Symptomatology and Determinants of Functional Limitation of Post Acute COVID-19 Syndrome Cases

    Persisting and New Onset Symptomatology and Determinants of Functional Limitation of Post Acute COVID-19 Syndrome Cases- A Study from a Northern District of Kerala Abstract Background: COVID-19 disease has a wide range of persisting and new onset clinical manifestations even long after the...
  15. Sly Saint

    Long Covid in the media and social media 2023

    quite early on in the LC 'discussions' on twitter Trish Greenhalgh said "there isn't a 'Long Flu'". eta: see https://www.s4me.info/threads/news-about-long-covid-including-its-relationship-to-me-cfs-2020-to-2021.14074/page-191#post-330618
  16. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    (not having a dig by the way) you mention the book on another thread about pacing. "The Mile High Staircase by Toni Jeffreys (1982)". does it actually use the term 'pacing'? nor did I until very recently. But having looked at the 'pacing for pain' it explains where many elements and the...
  17. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    yes pacing as a concept was around a lot longer before. See mepedia link in previous post. "Pacing is however more frequently used in the context of chronic pain where it has a background in operant conditioning. First described by Wilbert Fordyce in 1976,[18] pacing referred to a...
  18. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    I think we need to give Ellen Goudsmit more recognition. She introduced the disease specific form of 'pacing' for ME, and was a co-author of the original London criteria based on Ramsays description of ME. Both were hijacked and amended by the bps crew to suit their own agendas. "Pacing is an...
  19. Sly Saint

    More people could have hidden bowel condition: Microscopic colitis

    https://www.bbc.co.uk/news/health-65276600
  20. Sly Saint

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/cfs 2017, Goudsmit

    Bias, misleading information and lack of respect for alternative views have distorted perceptions of myalgic encephalomyelitis/chronic fatigue syndrome and its treatment Abstract The PACE trial is one of the most recent studies evaluating cognitive behavioural therapy and graded exercise...
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