Here is the NHS patient info on pacing (for pwpain):
11850Ppacing.pdf (ouh.nhs.uk)
in the words of Ellen Goudsmit
"Pacing versus graded activity: As I've noted before, pacing does not rely on plans. Indeed, if you see references to plans, goals or targets, you are probably reading about some...
Yes, I'm aware of that. But as I said before, I hadn't realised that they were also being given exactly the same spiel of the 'boom and bust' cycle, and the same type of 'pacing' as pwME/CFS.
So what is the point in all the literature on 'Pacing for people with ME' if it's the same as 'pacing...
Effects of sleep disturbance on dyspnoea and impaired lung function following hospital admission due to COVID-19 in the UK: a prospective multicentre cohort study
Summary
Background
Sleep disturbance is common following hospital admission both for COVID-19 and other causes. The clinical...
The point I was trying to make was that there is supposedly 'CBT for CFS' (several documents on this from the usual bps proponents), using the 'boom and bust' /fear avoidance/ deconditioning scenario for CFS. This was, and largely still is, the supposed 'evidence based' approach to 'treating'...
https://www.talkplus.org.uk/long-term-condition-video-modules
in each module you can access a pdf of all the slides.
first one on pacing
by accident I got to this page
https://www.talkplus.org.uk/the-boom-and-bust-cycle-video-module
Most of the videos are from around 2018.
I didn't realise...
pt2
TC "Obviously it’s not a cure for everybody. And people are often still left with some symptoms. But a lot of people do improve. And there are, as I say, lots of randomised control trials demonstrating its efficacy."
eta:
note 'Bens story' is also the only one featured on BABCPs personal...
podcast from 2019
CBT for Chronic Fatigue Syndrome
Let's Talk About CBT · 2019-11-19
https://uk-podcasts.co.uk/podcast/let-s-talk-about-cbt/cbt-for-chronic-fatigue-syndrome
still on their website (although from 2014), without any warnings.
CBT for chronic fatigue syndrome
https://www.kcl.ac.uk/news/spotlight/cbt-for-chronic-fatigue-syndrome
they're called 'Physician Associates' and their use is becoming more widespread.
(in particular for patients with LTCs).
https://www.healthcareers.nhs.uk/explore-roles/medical-associate-professions/roles-medical-associate-professions/physician-associate
Panorama from June 2022
Panorama investigates Britain's biggest GP network. US owned Operose Health provides GP services to the NHS, with 70 surgeries from Leeds to London and more than half a million registered patients. Reporter Jacqui Wakefield reveals a shortage of GPs, some less qualified...
only today came across this rapid response
Graded exercise therapy (GET) for people with chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME)
https://www.healthcareimprovementscotland.org/evidence/rapid_response/rapid_response_02-20.aspx
a section where they discuss the Cochrane...
https://www.sheffieldchildrens.nhs.uk/services/cfs-me/
1st link doesn't work
2nd link goes to the Royal College of Psychiatrists info sheet
3rd link page not found
4th link AYME no longer exists link goes to blank page
5th link doesn't seem to work.
this pdf, although not linked to is still...
this is still coming up if you google treatment for ME
(it's the 'old' BACME guidelines before their epiphany)
https://www.nbt.nhs.uk/sites/default/files/British%20Association%20for%20CFS%20ME%20-%20Therapy%20and%20Symptom%20Management%20in%20CFS%20ME.pdf
but I can't find where the link is...
https://www.the-scientist.com/news-opinion/hibernating-bears-provide-clue-to-preventing-serious-clots-in-humans-71064
research paper (not full text)
Sleep like a bear
Reduced expression of a platelet protein protects against thrombosis during chronic immobilization...
The mechanism of Long Covid (Post-Acute Sequelae of COVID-19; PASC) is currently unknown, with no validated diagnostics or therapeutics. SARS-CoV-2 can cause disseminated infections that result in multi-system tissue damage, dysregulated inflammation, and cellular metabolic disruptions.
The...
Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised controlled phase 2a pilot study
Lucy E.M. Finnigan
Mark Philip Cassar
Margaret James Koziel
Joel Pradines
Hanan Lamlum
Karim Azer
et al...
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