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  1. Sly Saint

    NHS Talk Plus Video Modules for people with Long Term Conditions (LTC)

    Here is the NHS patient info on pacing (for pwpain): 11850Ppacing.pdf (ouh.nhs.uk) in the words of Ellen Goudsmit "Pacing versus graded activity: As I've noted before, pacing does not rely on plans. Indeed, if you see references to plans, goals or targets, you are probably reading about some...
  2. Sly Saint

    NHS Talk Plus Video Modules for people with Long Term Conditions (LTC)

    Yes, I'm aware of that. But as I said before, I hadn't realised that they were also being given exactly the same spiel of the 'boom and bust' cycle, and the same type of 'pacing' as pwME/CFS. So what is the point in all the literature on 'Pacing for people with ME' if it's the same as 'pacing...
  3. Sly Saint

    Experts give verdicts on Tesco's new DIY health checks

    Experts give verdicts on Tesco's new DIY health checks (msn.com)
  4. Sly Saint

    Effects of sleep disturbance on dyspnoea and impaired lung function following hospital admission due to COVID-19 in the UK: 2023 authors incl. Chalder

    Effects of sleep disturbance on dyspnoea and impaired lung function following hospital admission due to COVID-19 in the UK: a prospective multicentre cohort study Summary Background Sleep disturbance is common following hospital admission both for COVID-19 and other causes. The clinical...
  5. Sly Saint

    NHS Talk Plus Video Modules for people with Long Term Conditions (LTC)

    The point I was trying to make was that there is supposedly 'CBT for CFS' (several documents on this from the usual bps proponents), using the 'boom and bust' /fear avoidance/ deconditioning scenario for CFS. This was, and largely still is, the supposed 'evidence based' approach to 'treating'...
  6. Sly Saint

    NHS Talk Plus Video Modules for people with Long Term Conditions (LTC)

    https://www.talkplus.org.uk/long-term-condition-video-modules in each module you can access a pdf of all the slides. first one on pacing by accident I got to this page https://www.talkplus.org.uk/the-boom-and-bust-cycle-video-module Most of the videos are from around 2018. I didn't realise...
  7. Sly Saint

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    pt2 TC "Obviously it’s not a cure for everybody. And people are often still left with some symptoms. But a lot of people do improve. And there are, as I say, lots of randomised control trials demonstrating its efficacy." eta: note 'Bens story' is also the only one featured on BABCPs personal...
  8. Sly Saint

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    podcast from 2019 CBT for Chronic Fatigue Syndrome Let's Talk About CBT · 2019-11-19 https://uk-podcasts.co.uk/podcast/let-s-talk-about-cbt/cbt-for-chronic-fatigue-syndrome
  9. Sly Saint

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    still on their website (although from 2014), without any warnings. CBT for chronic fatigue syndrome https://www.kcl.ac.uk/news/spotlight/cbt-for-chronic-fatigue-syndrome
  10. Sly Saint

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    if you click on the tag 'clock study' at the top of this page, there are 7 threads relating to it.
  11. Sly Saint

    Research news from Bhupesh Prusty

    But the Griffith University group seem to try this just about every year, and in the end it has the opposite effect.
  12. Sly Saint

    NHS: GP surgeries; privatisation; physician associates

    they're called 'Physician Associates' and their use is becoming more widespread. (in particular for patients with LTCs). https://www.healthcareers.nhs.uk/explore-roles/medical-associate-professions/roles-medical-associate-professions/physician-associate
  13. Sly Saint

    NHS: GP surgeries; privatisation; physician associates

    Panorama from June 2022 Panorama investigates Britain's biggest GP network. US owned Operose Health provides GP services to the NHS, with 70 surgeries from Leeds to London and more than half a million registered patients. Reporter Jacqui Wakefield reveals a shortage of GPs, some less qualified...
  14. Sly Saint

    News from Scotland

    only today came across this rapid response Graded exercise therapy (GET) for people with chronic fatigue syndrome / myalgic encephalomyelitis (CFS/ME) https://www.healthcareimprovementscotland.org/evidence/rapid_response/rapid_response_02-20.aspx a section where they discuss the Cochrane...
  15. Sly Saint

    UK: Sheffield Children’s Hospital, NHS, CFS/ME clinic

    https://www.sheffieldchildrens.nhs.uk/services/cfs-me/ 1st link doesn't work 2nd link goes to the Royal College of Psychiatrists info sheet 3rd link page not found 4th link AYME no longer exists link goes to blank page 5th link doesn't seem to work. this pdf, although not linked to is still...
  16. Sly Saint

    UK: George Eliot Hospital NHS CFS clinic

    https://www.geh.nhs.uk/directory-of-services/specialties-and-services/c/chronic-fatigue-syndrome/
  17. Sly Saint

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    this is still coming up if you google treatment for ME (it's the 'old' BACME guidelines before their epiphany) https://www.nbt.nhs.uk/sites/default/files/British%20Association%20for%20CFS%20ME%20-%20Therapy%20and%20Symptom%20Management%20in%20CFS%20ME.pdf but I can't find where the link is...
  18. Sly Saint

    Article: Hibernating Bears Provide Clue to Preventing Serious Clots in Humans

    https://www.the-scientist.com/news-opinion/hibernating-bears-provide-clue-to-preventing-serious-clots-in-humans-71064 research paper (not full text) Sleep like a bear Reduced expression of a platelet protein protects against thrombosis during chronic immobilization...
  19. Sly Saint

    Hypothesis: inflammatory acid-base disruption underpins Long Covid 2023, van der Togt & Rossman

    The mechanism of Long Covid (Post-Acute Sequelae of COVID-19; PASC) is currently unknown, with no validated diagnostics or therapeutics. SARS-CoV-2 can cause disseminated infections that result in multi-system tissue damage, dysregulated inflammation, and cellular metabolic disruptions. The...
  20. Sly Saint

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised controlled phase 2a pilot study Lucy E.M. Finnigan Mark Philip Cassar Margaret James Koziel Joel Pradines Hanan Lamlum Karim Azer et al...
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