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  1. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There is what seems to be a new article about this research project on the MEA website which was linked from today's email newsletter. I'm copying it here for ease of quoting and discussion: RESEARCH: CLINICAL ASSESSMENT TOOLKIT The ME Association is funding a study led by Prof Sarah Tyson of...
  2. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There is such a massive difference between doing something every day with minor adjustments and little detriment, and doing the same thing once on an average day, but crashing afterwards, and all variations in between, that this becomes meaningless. Example: I might spend time chatting with...
  3. Trish

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Thanks, I've spotted some more. I might get around to correcting them. :)
  4. Trish

    Experiences and methods for observing, testing and tracking cognitive fatigueability and PEM - discussion thread

    I think observing usual typing activity would be problematic, as different tasks require more thought, so would happen more slowly even when relatively less fatigued, and would be much more complex to track. A short typing task about the length of this post, with a document to copy would be OK...
  5. Trish

    UK: Contaminated Blood scandal

    I think the report and any discussion of it can go on this thread.
  6. Trish

    Experiences and methods for observing, testing and tracking cognitive fatigueability and PEM - discussion thread

    I notice I'm cognitively fatiguing when my typing error rate rockets up. If it's really bad, and I want to type something, I switch from touch typing on my laptop where I can't see the keys, so I'm typing from memory of key positions, to typing one fingered on my smartphone where I am looking at...
  7. Trish

    Experiences and methods for observing, testing and tracking cognitive fatigueability and PEM - discussion thread

    @forestglip has started a thread about using photos of the face to track changes. Go to that thread if you want to discuss it: Idea for machine learning model to track fatigue accurately Also from that thread, Peter Trewhitt has suggested tracking how long a string of numbers you can recall, eg...
  8. Trish

    Experiences and methods for observing, testing and tracking cognitive fatigueability and PEM - discussion thread

    This arose on another thread and I thought worth starting a new thread: Are there changes we notice to cognitive function that indicate we are cognitively fatiguing and may be crashing or crashed? Can we develop ways of tracking them easily to help with pacing? This thread is for sharing...
  9. Trish

    Idea for machine learning model to track fatigue accurately

    Fascinating idea, good luck with working it out, @forestglip. @Peter Trewhitt I like your idea of digit span as another indicator of PEM. Maybe we need a separate thread on things we notice that are easily testable so as not to divert this thread. I'll do that. Edit: New thread here...
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