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I have posted the following on Hilda's talkpage:

Note that the talkpage is a rather unwieldy string of replies to her original introduction to the talkpage. https://hbprojecttalk.wordpress.com/2023/11/10/welcome/ Hilda's brief announcement about what she's doing now, ie discussing next steps with the IAG is a second post on the talkpage...

The exchanges I've quoted are on her talkpage which is public. https://hbprojecttalk.wordpress.com/2023/11/10/welcome/ The bit about her keeping her talkpage and email available is from a private email. If anyone wants to communicate publicly with Hilda, do it on the Talkpage. If you want to...

One of the things the IAG was working on was a draft editors note to be added to the 2019 review. This clearly hasn't happened. The current editors note says: Editorial note A statement from the Editor in Chief about this review and its planned update is available at...

This is Hilda's message posted on her talkpage: https://hbprojecttalk.wordpress.com/2024/12/18/brief-message/ 12/18/2024 Brief message Many of you will have seen Cochrane’s recent communication about the review on ME/CFS and exercise. We regret their decision to reject our advice, and are...

Another small shock from Cochrane. They appear to have taken down all Hilda's updates that were posted on the Cochrane website. The first 3 from May, June and July 2021 have been replaced by yesterday's announcement, and the last 2 from November and december 2023 go to page not found. I wish...

I have just posted this on Hilda's talkpage, which I suspect she will take down now that the process is cancelled: trishrhymes December 18, 2024 at 9:30 am Your comment is awaiting moderation. Hello Hilda, I am shocked, but not really surprised by Cochrane management’s decision to scrap the...

I still use the Harry Potter books to help me fall asleep sometimes. I decided to detach them in my mind from the author. I have read a couple of her books for adults and was surprised at how badly written they are. I got the feeling that the attempt to transfer from children's fantasy to adult...

It seems particularly insensitive to send out a Christmas card featuring a photo of someone many pwME have just complained about and asked to stand down on the grounds of writing insulting articles containing bad advice. And we can't even usefully complain about it, as Neil Riley has also just...

We have had such bad experiences in earlier times on the forum, much of it hurled at mods in private. We have worked hard to keep the forum ethos friendly and constructive, to create a safe space.

Too late, I think. Today's announcement from Cochrane specifies that any complaint has to go via the official Cochrane complaints procedure, and any addressed to anyone else will be ignored.

Davenport was on the review writing group appointed by Cochrane to write the new protocol and review.

Caroline Struthers has been submitting a separate series of complaints to various bodies including the Charity Commission, shown on this thread: Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

Sorry to cause confusion, no we haven't complained to the Charity Commission. I was going to work on that but got sicker instead. We have submitted formal complaints to Cochrane, shown here and here.

I don't think they will listen to anybody but their own echo chamber.

I find it very odd to see a Seasons greetings card filled with photos of trustees and senior staff. Very pseudo corporate or something.

One not to watch, I think.

I wonder what they will do about the S4ME complaints. Time for another one, if only any of us had the energy to compose and submit one to both Cochrane and the Charity Commission. I think I've reached the end of the road with composing letters to Cochrane. It's taken too much out of me. This...

I doubt she did the casting. She doesn't do the TV scripts.

A couple of days ago. A bit later than planned due to health etc.