Search results

I prefer to call it psychobehavioural. There's nothing biological about these people's beliefs. It's all about blame based on our allegedly wrong thoughts and behaviours.

Asking about bouncing back from stress without specifying what sort of stress is ridiculous. The stress I think of could range from dropping a bowl of soup on the floor and having to use energy I don't have clearing it up, to someone close to me dying. The answers would be very different, and...

I think the perspective probably looks different on each side of the Atlantic. BPS is still very powerful in parts of Europe, and they're not giving up, digging their heels in with Long Covid as well as ME. There has been far less bio research in Europe than in the USA, and at least some of it...

Some posts have been moved to: Minirico Mental Intervention and Nicotineamide Riboside Supplementation in Long Covid

But surely that's the point. He's not the same as the average victim of the LP cult, for whom I have huge sympathy. He's got 40+ years experience as a doctor, professor of medicine, and expert in clinical trials. However persuasive his trainer is, he has agency and knowledge. He presumably...

He can't help himself. The tone of that article is so complacent, patronising and flippant. What about serious complaints, like the S4ME committee one about Sarah Tyson's appalling behaviour towards our members? That was dismissed with 'noted' followed by full support for Tyson. No I won't be...

Thanks, well done. Surely that means their conclusion is wrong too. They can't claim real effect when it didn't even reach statistical significance.

The second one by Peter Hall et al. which is mainly promoting electrical brain stimulation methods, also makes a good point against exercise therapies:

If anyone, including Paul Garner, is reading this thread and wants to know more about LP, its methods, and the 'brainwashing' aspects, and harm it can do, I suggest reading these stories written by people who underwent LP. https://lp-fortellinger.no/en/lp-stories/ If you don't have the energy to...

There are much better surveys showing GET leads to significant worsening even when done by so called experts.

I have just replaced my failing fitbit with one that does HRV. In the first week my HRV is consistently scarily low (mid teens), but I've decided to put that down to old age and not worry about it.

Garner has backed himself into a corner by being so frequently public in his pronouncements on the media and social media and by adding himself as a signatory on BPS so called research and reviews. He has made it his retirement project, with a new set of friends and colleagues, including...

At the end of paragraph 2, you say: should be extrapolated... i think you mean: should not be extrapolated ..

We can link to anything that is publicly available. And quote short extracts, but not copy whole documents.

This is our thread on the survey. Note that there were serious criticisms on that thread about the way the survey was conducted. Survey: "TREAT ME" (ME/CFS & Long Covid Treatment Survey), by 'LongCovidPharmD'

Given that this is a social media generated patient survey, and the outcomes are self reported, and the numbers who had tried each treatment listed vary enormously from a few dozen to thousands, there's not much that can be concluded about any individual treatment, except graded exercise therapy...

Also they seem to be saying pacing needs to lead to improvement to be classed as effective. But pacing has only ever been claimed to be a management strategy aimed at avoiding deterioration. Just like some drug treatments for incurable diseases, avoiding or delaying deterioration is a win when...

These appear to be contradictory. I haven't read the whole paper.

There is also evidence some have POTS without hypotension.

I can't see it as I've blocked her. Can you copy the post here, please?