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Looks identical to FINE. More FINE than PACE anyway. FINE had null results. It formed the basis of an NHS training module for what they called "chronic fatigue". Obviously because it's nonsense. What is it called to do the same thing over and over again expecting different results? Too bad...

Anyone except the maligned chronic illness community, of course. But we don't count. Literally we don't even count, people are shocked at the possibility that this could go on and on and still they don't count the people who have already been living this way. I will point this out at every...

The saddest part is that this was all predictable. If someone like me, so brain-fogged I have to take days to fill in a simple questionnaire, could see this clearly, that a multi-trillion dollar industry with tens of millions of expertly-trained workers completely missed it is simply absurd and...

Hey, when your ideas aren't worth a dime, always use $100 words to make stuff up about what those ideas would be if you had any. It's just academia things to use obscure words where common ones are perfectly cromulent.

https://www.sheffield.ac.uk/scharr/research/centres/ctru/mss3 I don't see a thread on this. The list of contributors imply a very expensive price tag for doing copy-paste research that's been done many times before. No idea if ME is an exclusion criteria, very few details. Obviously not a...

There could be something similar to varicella and how it manifests as zona in some adults. Everyone is infected with varicella but most people never develop zona (shingles). An opportunistic reactivation, plausibly caused by another infection that simply opens the door for a pathogen that has...

"This is scientific because scientists are involved" is just about the level of intellectual discourse I expect here. Especially with the whining about how we don't understand how clinical trials work when they are explicitly intending to cheat and not bothering with any good practices. These...

I've had similar white coating on tongue for about 3 years. No idea what it is. Assumed it was fungal and tried a few treatments but nothing helps. Haven't seen a physician since so that's another thing on the back burner but it seems pretty common in LC. And the toes, but far less severe than...

So did this happen with a secret advisory group? Or Bastian alone? The secrecy is not promising at all when the very problem here was secretive political manipulation. Even if the report is good, the process shows no lessons were learned at all and this failure will continue to happen, all it...

Yup. Don't know if I just didn't notice them before but it's been obvious this year. Maybe it was there a long time ago, I don't really pay attention much to weird things happening to my body anymore. I noticed it mostly when I saw people with LC talking about it and saw the same. I have the...

Horrible. Predictable. Still horrible.

We even have Vink's reviews as a good starting point. It's just a question of process, the evidence is obviously invalid it's just that the process is corrupted and ignores its own grading system, deferring to the very people who fabricated the evidence to review it and marvel at how great they...

Like I said: false attribution syndrome. No one seems to ask the question of whether this is of any use whatsoever, it's simply assumed to be. It clearly isn't useful other than as an excuse not to do their job, hence why the awkward question isn't asked. A few words could be swapped and this...

I can't say I agree with the logic here: I understand where it comes from, but this is very misguided. Literally everything useful, from the very terms to advice about rest and pacing, comes from us and PEM is an ME-specific term. It's only because of the stubborn denial that this has to be...

I'm getting the picture that she thought the talk was entirely on LC, despite ME being in the title. Either they did not communicate to her or she explicitly intended not to talk about any of it, which given the title is really odd. Anyway at least this is something that $1.15B can crush easily...

Can't find it, sorry. I thought I remembered the exact words but clearly not. Or maybe the term "out of scope" was in the BMJ article authored by Greenhalgh. Searching for it however I noticed how numerous the references to "liaison psychiatry" are.

There is. It says everything related to ME/CFS or PVFS is "out of scope". Another article (published in BMJ, IIRC) explained the reasoning: it said that they glanced at "the fatigue" but some LC patients "felt" it was different and related to organ damage. So that's it. And here is her...

She just recently published an article telling people that you shouldn't block your critics and instead engage with them... She has not clarified any of the claims. Merely said "look at other things I wrote", which all confirm this is what she believes. She has praised Wessely and Gerada for...

Great article! It still understates some details, describing as "frustrating" circumstances that are often deadly, and overplays the efforts that were made to solve it, especially the CDC's work at Lake Tahoe. But they asked the right people: Nath, Hornig, Moreau. Lots of focus on PEM and how...

No accountability like... someone holding people accountable. If recent years have changed one thing, it's that the saying that enforcement is 9/10 of the law is vastly inadequate. It's really 9.9/10. Behind closed doors, all sorts of rules can be bent. And if someone breaks a rule and no one...