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That's problematic because all those important things are things anyone working in a BPS mindset can't impact, so that makes them useless in the process. Which is true, but it's not the answer they want. They don't want to know what's important to us, they want to address things important to...

To "objectify": verb degrade to the status of a mere object. "a deeply sexist attitude that objectifies women" express (something abstract) in a concrete form. "good poetry objectifies feeling" Definitely the first one. Not a single objective question in any of those biased generic...

Studies relying on health records are a terrible idea. Those health records are less reliable than tea leaves.

Body Politic statement on the growing trend of locking up LC in the CBT/GET paradigm. https://docs.google.com/document/d/1m8-2WklPS_n2IuIl-ycm58fHSlKV9RP8g-lxqf3NjOk/edit In light of recent public conversations about the role of exercise, neural training, and cognitive behavioral therapy in...

Of course that's the whole point. If it gets defined, it will be harder to shunt it into the MUS void. Everyone who argues against defining LC wants it to be forgotten in the psychosomatic bin and won't care one bit about the consequences.

Interesting. From personal experience it would probably be relevant, I don't know how generalizable it would be. I actually have to pace my self-massages, usually focused on legs and neck and shoulders, because after 10-15 seconds I simply can't go on, my muscles burn and basically can't apply...

I think one explanation is typical STEM field failure in dealing with things that maths can't solve. Medicine is a purely technical training, all maths and rote memorization. Health and illness do not fit in those boxes, so training is incompatible with real life in the same way as most...

Not ME-related, not about the recent guidance either, but today is a day of online advocacy for Long Covid in France. They are demanding recognition and competent care and research. In other news today the French legislature voted in favor of a bill recognizing LC. It's not good, unfortunately...

Article can't be published because of paywall: "The Challenges of Getting Long-Covid Patients Back to Work". Direct image: https://pbs.twimg.com/media/EuXN2fCVgAkz4-Y?format=jpg&name=4096x4096

And yet, seems rather consistent with other countries: Almost like efforts should be made to actually count this so we could know instead of speculate.

I have no memory of anyone expressing that a major worry related to chronic pain is that it is a worrying signal of physical injury. Maybe it was expressed in some vague way but it would add up to much less than 1%. Nobody cares about this stuff, people suffering chronic pain only want the pain...

The validation process in EBM is a complete joke. Literally: we like what it says therefore it is valid. Turns out inventing a process to circumvent the scientific method and make it easier to publish nonsense leads to circumventing the unscientific trash being published more easily. By that...

X factor also means something special, what people who have "it" bring. Very vague, whatever it means, but basically it's special, the secret ingredient that turns something normal into something extraordinary but that can't be described. Hence the name of the show. Pretty sure it's that sense...

It frankly seems to be the "innovation" here: give it a cool name. We know these people are obsessed with labels, it's only natural. They can only ever change the packaging anyway, there isn't much left to tweak when all you do is the same things in loops.

They are counting natural recoveries as the product of their intervention, simply ignoring those who don't and no one's really counting anyway. At least this largely explains why so many people are convinced that it works. And since most will recover from LC, it looks impressive. All it would...

One thing LC has shown is that far from being a fringe view, the ME-BPS view is actually fully mainstream. It's basically unquestionable gospel for the most part, right there with maligning any criticism of it as personal attacks. No one dares openly challenge it, attacks are immediate. Despite...

Most of my symptoms aren't on my medical record. It was very clear from the beginning that discussion of symptoms is not something medicine does well when there are more than a handful, and even that is stretching it. Didn't help that remembering and explaining things has been one of my most...

Not necessarily the UK, but it's pretty much certain that at least one country will do this. And if done, it would be in such a way that guarantees the maximum number of LC cases because the most vulnerable population to LC will be vaccinated last. Especially for countries that may already have...

Few and mixed so far. Some hopeful simply because it has the words saying to take it seriously. Some negative because they actually read the words and how they contradict the obvious platitude. None seem familiar with what CBT and GET entail. I follow a few, will update (if I remember to...)...