Search results

Discussion: It is clear that the lack of a universally accepted clinical criteria has led to multiple discrepancies, problems and confusion as to how to accurately diagnose and stratify patients with ME/CFS. This has severely hampered the pursue of studies to clearly define the environmental...

Maybe this needs its own thread but... uh... not worth it. Same old predictable tripe. Also: pre-print. Post-COVID-19 Symptom Burden: What is Long-COVID and How Should We Manage It? https://www.researchsquare.com/article/rs-164000/v1 Abstract: The enduring impact of COVID-19 on patients has...

I was wondering whether someone was at least bothering to research this. Hopefully it's high quality and not the only one as this is a critical question, despite being largely ignored. Scientists want to know if vaccinated people can still become COVID-19 long-haulers...

Actually seems that the memos haven't quite been read by everyone because I saw PACS and PASC used from different NIH sources. Yikes for communication clarity. Either it's Post-Acute Covid Syndrome or Post-Acute Sequelae from Covid. Hey, it's not as if naming things weakly is a known problem in...

I noticed that as well. It's an LP thing. Someone posted a pamphlet about it, didn't save it. I assume it's track to recovery, yeah. His entire article is basically all the LP buzzwords arranged in something similar to a fake review by a sales executive.

I think this is related. Looks like NIH is using PASC internally. Notice of Intent to Publish Research Opportunity Announcements (OTA-21-015) for the Post-Acute Sequelae of SARS-CoV-2 Infection (PASC) Initiative https://covid19.nih.gov/sites/default/files/2021-02/PASC-Pre-Notice.pdf This...

Linked in the article above is a message from the director of NINDS dated today. New resources for large-scale ME/CFS research https://www.ninds.nih.gov/News-Events/Directors-Messages/All-Directors-Messages/New-resources-large-scale-MECFS-research Although many people fully recover from the...

Technically more Long Covid but at least they are quite explicit about the link so this is also news about ME. Working together to understand long-term effects of COVID-19 https://schorline.ninds.nih.gov/2021/02/05/long-term-covid-19/ During their initial COVID-19 illness, many patients have...

Weird. And fishy.

Likely after the fact but Cochrane is an independent non-profit, it is not regulated and can basically publish what they want as they see fit. Their influence comes from the trust medical professionals and organizations put in them, they have no official power. Clearly misplaced trust but...

The cycle of failure in action: Hear and dismiss all symptoms Write down "tiredness" instead Trawl through medical records and find so many people who are "tired all the time" and nothing else Conclude that tiredness is the only outcome of Long Covid and nothing else Also notable that the many...

Swiss study on Long Covid symptoms. The study is in... uh... another language but whatever only this abstract is in English. https://www.corona-immunitas.ch/en/program/studies/e7-zurich-coronavirus-cohort-study/ Can't find the link to the paper itself. Results: We enrolled 437 SARS-CoV-2...

In case anyone has any doubt that they are trolling on purpose: Most politicians are genuinely more honest than this, would never stoop this low. Not all, definitely most.

Just because I never saw it before, a French MD had noticed how PACE doesn't stack up to its claims. For record-keeping, it's from 2018. https://www.redactionmedicale.fr/2018/06/fatigue-chronique-meme-si-cest-dans-the-lancet-cela-merite-reproduction-de-lessai-surprise...

In all other professions, and I know this for a fact is very prominent in the software industry, when something doesn't work we just go ahead and fix it instead of whining about it endlessly. Hell, in the software industry it's even common to do it for free! People just straight up take it for...

This is obviously a non-starter, I hope reason prevails in not only dismissing this but responding in kind by raising the standards, rather than lowering them from their current state of: basically non-existent. Very likely in response to the NICE downgrading of evidence and other hits their...

Starting to skim, pretty big team. Just want to post for now that they also published a companion website to visualize the data: https://irenefp.github.io/bcellm7.html. I see no major red flags other than there being no changes following CPET. But otherwise this is out of my league. Which is...

I will boldly predict the response: "yes, you are correct, now what do you want us to do about it?" And if you reply that they should correct the article they will be puzzled as to why you would want such a bizarre thing. Give or take. BMJ gonna BMJ.

One of those diseases where even if you cure everyone, new patients would still be happening at a steady rate. Usually curing a disease is bad economics. Not this one, this is a constant flow.

Ah, yes, "anticipating" something now that it's so large it's impossible to ignore. I, too, anticipate snow when there is already more than an inch on the ground. I have a 100% hit rate with that strategy. I will even make a bold prediction here: the Covid pandemic could be a big deal. I know, I...