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Video 2: ME/CFS and Long Covid are so hard to present in a way that looks credible. And there are a lot of ways to get things wrong. I thought this video was fairly good, but there were some problems. There's the usual one of presenting a list of causes of Long Covid, in this case, as if they...

https://www.mesupport.org.nz/longcovidhelp One video down, and thankfully it is looking pretty good. There are quite a lot of Māori words that have come into general use here in NZ. I think overseas people will understand from the context though.

i.e. funding from the government Please let it be good.

What the title says: New Zealand 2023: ME Support's Long Covid online resource

I assume FFS was meant to be FSS (functional somatic symptoms), and that these two instances are typos? Perhaps a Freudian slip? Either way, FFS (for f***'s sake) is exactly my reaction to this. Just as an example, Hip Pain in a measure of psychosomaticism? Does that mean that people with...

I think the healthy controls were there to provide a baseline for the cardio and cognitive measures. But yes, it does make for a muddle - it sort of makes it sound like it was a proper trial with controls, when there was no treatment control.

Thinking about this overnight, this study makes me a bit angry. We are all so desperate; if anyone made cryotherapy easy to access and affordable to people with ME/CFS, I'm sure there would be a long queue of people ready to try it. I might even be among them. There doesn't need to be any...

I see most of the authors are based in California, but the last author, Veronica Muller, has a Hungarian connection: School of Medicine, American University of Health Sciences, 1600 East Hill St., Signal Hill/Long Beach, CA, 90755, USA Department of Pulmonology, Semmelweis University, Budapest...

Yes, I agree. Trying to refine criteria when we don't even have basic epidemiology, let alone biology, is mostly wasting time. I'd prefer it if Professor Jason focussed more on really good epidemiological studies rather than this naming stuff. I understand that it can feel a bit like a chicken...

How could they get that so wrong? It just takes a quick google e.g. Long-term sequelae following previous coronavirus epidemics, 2021

Discussion I'm not sure that they can conclude this, because I don't know how long they had the participants report PEM and other symptom effects for after the cryotherapy and stretches. I found the whole thing rather vague, unconvincing and frustrating. It's possible it could work - brief...

Sample selection We've seen these extreme losses in screening from Polish research before. Of the 238 people excluded, 180 did not meet (even) the Fukuda criteria; 30 had a 'psychological/psychiatric impairment'; in 174, another diagnosis or fatigue was not the main complaint. Edit - The...

Certainly the ideas about prevalence and diagnostic criteria in this paper look worth talking about. The problems with English in that second sentence is representative of the paper. Here's another sentence with difficult language; I think probably every second sentence has at least one error...

This study will be discussed at the next IACFSME Journal Club. 1 pm 14 April New York time. Slawomir Kujawski, PhD Nicolaus Copernicus University Department of Exercise Physiology and Functional Anatomy Toruń, Poland Abnormal and prolonged recovery after physical, cognitive, emotional, and...

Yeah, when I answered those questions, I assumed it meant having defined subtypes e.g. for severity: mild, moderate, severe, rather than excluding subtypes. But I agree, that set of questions is confusing. For duration, I was thinking of the Hornig study, the less than 3 years; more than 3...

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Resignation syndrome is discussed more here: Resignation syndrome (sleeping beauty syndrome) and on other threads with the 'resignation syndrome' tag.

I thought the survey was ok. There is room for comments. I'm not too sure how useful the results will be. If a majority of people want a particular diagnostic criteria used, or think ME is or isn't the same as CFS, will it change anyone's mind? They are aiming for a sample of 2000 people...

The authors seem to flop about in numerous paragraphs on the question as to whether exercise helps Long covid and, particularly, ME/CFS. It's as if two different authors with two different ideas took charge of different paragraphs. They seem to come down to the conclusion that exercise is good...

That's how they defined ME/CFS-like symptoms - fatigue (or muscle fatigue? it isn't clear) symptoms greater than a 5 on the 1 to 10 scale; mild but not major impairment of cognitive processes and lack of restorative sleep. Around 7% of their sample had that at the one year mark. That's a...