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We now have a separate thread for the 2023 Helsinki University conference on Long Covid, here: Finland: 2023 Helsinki University Long Covid conference

Posts about the 023 Helsinki University conference on Long covid which had Paul Garner as one of the speakers have been split off to a new thread: Finland: 2023 Helsinki University Long Covid conference

Just bumping this, a very good initiative. The website reports that nearly 200,000 pounds has been raised for ME/CFS research.

For what it's worth, my measured ferritin levels have been very normal during my illness. My son's ferritin level was actually low, below the normal range, when he first got ME/CFS. He was prescribed an iron supplement; his measured levels have been normal since.

(cross post with SNT Gatchaman) Editorial in the Journal of Psychosomatic Research Reference 8 is: Y. Yamamoto, Y. Otsuka, K. Tokumasu, N. Sunada, Y. Nakano, 6 HondaH, Sakurada Y, Hasegawa T, Hagiya H, Otsuka F. Utility of serum ferritin for predicting myalgic encephalomyelitis / chronic...

Just to clarify in case it is needed, I found the use of the Atwood quote in this paper distasteful, maybe that's the wrong word, I found it incredibly wrong. Because Atwood has said the opposite to what people like Chalder have advocated. To co-opt Atwood's credentials as a feminist and...

From an email: Be a part of designing our new brand! Would you believe our current logo and brand are nearly 10 years old? We think it’s time for an update. We want to make sure the way Emerge Australia looks, sounds, and feels truly reflects the people we support and we're partnering with...

In one breath they say that people with FND need better care, but they also seem to want to reduce investigations that might identify other causes of the reported symptoms. They include this quote in the paper. Which illustrates just how limited their understanding is. Of course things that...

This paper is such a perversion. FND diagnoses are stable partly because, even when the person is later conclusively found to be suffering from some catastrophic neurological or endocrinological disease, the people who initially diagnosed them with FND continue to claim that there is a...

Looks pretty 'once over lightly' from the abstract.

Caoimhe McLoughlin, Ingrid Hoeritzauer, Caitlin Adams, Selma Aybek, Janet Baker, Harriet A. Ball, Kim D Bullock, Chrissie Burness, Veronica Cabreira, Trudie Chalder, Barbara A. Dworetzky, Sara Finkelstein, Paula Gardiner, Beatrice Garcin, Jeannette Gelauff, Laura Goldstein, Cordelia Gray , Anika...

Wow. To have Chalder, who has probably done as much as nearly anyone to reduce the level of credibility women have when presenting to their doctors, telling the world about feminism in health care is truly monstrous. Yes, I saw a comment by someone in social media lately promoting FND as a...

I don't think an RCT has to be large to be useful. A small one can identify things that are worth more study. And actually, maybe fewer, better quality trials when it comes to treatments would be a good thing, be less wasteful and lead to less misinformation. Maybe researchers can make better...

Obviously things will vary from country to country and possibly from ethics board to ethics board. The system needs to be improved so that there is more consistency. In my country, there is a system for overseeing ethics boards, there is accountability. It's imperfect, but there is a...

This of course is a big question. Paxlovid seems to be a simple enough treatment. With the lobbying might of Pfizer and the enormous socio-economic impact pushing decision-makers to act, there will surely be trials giving it to people without risk factors for progression to severe disease...

Treatment reduced the risk of severe acute disease enormously in this health-compromised sample (halved the rate of death; hospitalisation rates were 75% of untreated people). The post-acute disease symptoms that were reduced included symptoms that are part of ME/CFS. It's a shame that...

From the abstract, it looks like a very interesting study. Of course not all post-covid illness is ME/CFS-like, but there is reporting on specific symptoms including fatigue and malaise, and dysautonomia. I look forward to seeing if the drug reduced ME/CFS symptoms. The sample is heavily...

Yes, and as we noted earlier, we don't know what "Long covid" meant in the minds of the doctors who diagnosed it. The finding of a useful effect from metformin may or may not have much bearing on the incidence of ME/CFS-like illness.

The new version of the paper just has the cumulative incidence chart for Metformin and the placebo in the main text. Figure S3 is the cumulative incidence chart for all of the treatment arms, but in this latest preprint version, there are no lines on the chart. This suggests that they might...

From the Long covid in the media thread, an article about the study: