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That's great that there was that additional benefit of providing feedback on the utility of the CPD module. It was a smart idea to link the essay to completion of an education module. However, unless that CPD module has been improved a lot since I last looked at it, there are a lot of problems...

Here's the forum thread on the paper: Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

That's a good point, new mothers may put fatigue down to poor sleep, and so not say that they have unexplained fatigue, or think of it as a disease symptom.

A number of us get oedema in PEM. If you look at photos of people with PEM, they often have puffy faces, swollen eyelids. So, that's an interesting thought, that the kidney is on a 'go slow', resulting in poor management of hydration. Gastroparesis could be another example of a reduction in...

What an interesting question. The decreased risk of post-infection malaise and cognitive problems is very marked. As far as I can see, PASC is defined as any of these that were not present prior to Covid-19: So, there's quite a lot there that we wouldn't necessarily associate with ME/CFS...

Welcome to the forum Chris @MelbME. It's good to have you here; thanks for the information about the study.

I'm with you on the pedantry @Andy, the different approach to the disease name jarred each time I read it. But, actually, the essay was very nicely done. I can see why it won. Its premise was quite similar to the conclusion from that recent Swedish study that interviewed parents of young...

It's wonderful to have the Minnesota ME/CFS Alliance supporting the campaign. Thanks very much to @Dakota15 for facilitating that. That brings the number of organisations supporting the campaign to an amazing 75. Only 28 signatures from 11,000 now. The petition has been getting some good...

Last one. I've copied the whole 'Implications to practice' section because I think it's a really important conclusion. A diagnosis or a known etiology is not a prerequisite for good nursing care (or for good primary health care in general). If the ill person is listened to, and believed, a lot...

On the difficulties of knowing how much to push the child: I'm not sure that Long Covid is in fact rare in children/young people, nor that rarity is a reasonable explanation for health professionals to accuse people of exaggerating or imagining symptoms. Similarities with ME/CFS...

That excerpt is quite telling. You can see the vulnerability of people to the ideas of health care providers who at least appear to understand. An interesting anecdote about a girl's body growth stopping. I think this is an understudied aspect of the illness in young people; I'm convinced...

Yes, it seems to be a sympathetic study. Some excerpts that describe the study, or that people might find useful or interesting: This was a qualitative study with an inductive and exploratory approach employing thematic analysis (Braun and Clarke, 2006, Braun and Clarke, 2019). The study was...

The Introduction: I don't know what 'determination' means in this context. 1.5% of people with ME/CFS? The reference is the Canadian Community Health Survey statistics for 2015-2016. So, that's not quite 2017 data. I looked very quickly at the 2024 survey. It doesn't refer to ME/CFS, it...

That's hilarious. This whole things does explain some of the weirdness we have seen here. But, quality assurance systems? What systems?

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Long Covid Switzerland Long Covid Kids Switzerland Added, thanks to @Yann04 If anyone else is aware of other Long Covid support groups in their country, please note them here or let a moderator know.