Search results

  1. E

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    My experience is slightly different but shares some similarities to what @Trish states here. Two months after my first Covid infection I has a severe mononucleosis infection. After that I experienced months of post-viral illness, however I wasn't radicially resting and instead doing a very slow...
  2. E

    Opinion The scientization of public policy and politics: A new approach to conceptualizing and identifying the phenomenon, 2023, Roberts

    Did I understand this correctly? According to his line of thought a disease starts to become a disease once a clear biological biomarker exists. This of course means that the early victims that died of HIV/AIDS didn’t die of a disease, because the objective biomarker was only found later, the...
  3. E

    Do the findings in LC suggest two distinct phases for ME/CFS onset?

    Personally, just talking about my experience, I do feel like there are different stages, 2 more or. The acute or post-acute illness phase, followed by the chronification of this post-acute phase. I've seen researchers express the same beliefs, in particular Carmen Scheibenbogen. This makes...
  4. E

    Post-COVID symptoms are associated with endotypes reflecting poor inflammatory and hemostatic modulation, 2023, Andy Yi An et al

    24 patients all hospitalized due to Covid pneumonia follow-up 4-12 weeks later where 10 (50% females, mean age 55) reported at least one lingering symptom (fatigue and shortness of breath being the most common). Doesn't seem to be the most robust representation of Long-Covid. Funnily enough...
  5. E

    Opinion The scientization of public policy and politics: A new approach to conceptualizing and identifying the phenomenon, 2023, Roberts

    Is part two going to be "scientization of public policy and politics: How people that practised research wanted to make us believe that the earth is round and how this technical/scientific misrepresentation of a political topic wanted to create incentives for us to sail around it"?
  6. E

    Retinal Optical Coherence Tomography Features Associated With Incident and Prevalent Parkinson Disease, 2023, Wagner et al.

    Thank you!!!
  7. E

    Retinal Optical Coherence Tomography Features Associated With Incident and Prevalent Parkinson Disease, 2023, Wagner et al.

    Awesome! Thank you :) Maybe you could also tell him about this study https://link.springer.com/article/10.1007/s10456-023-09885-6 and trial https://classic.clinicaltrials.gov/ct2/show/NCT05635552 which uses these techniques, as well as the work by Carmen Scheibenbogen who wants to use OCT-A in...
  8. E

    Long-term health consequences among individuals with SARS-CoV-2 infection compared to individuals without infection, 2023, Heidemann et al.

    The Robert Koch Institute (RKI) is the lead biomedical research insitution of the German Government, subordinate to the German Ministry of Health, who's central task is public health care. Being responsible for disease control and prevention they were central to everything related to Germany's...
  9. E

    Long-term health consequences among individuals with SARS-CoV-2 infection compared to individuals without infection, 2023, Heidemann et al.

    Great that this is an RKI study. Independent RKI Data seems to play a big role in the German health sector.
  10. E

    Retinal Optical Coherence Tomography Features Associated With Incident and Prevalent Parkinson Disease, 2023, Wagner et al.

    Sounds like good news for Long-Covid and ME/CFS to me, since OCT-A and some other techniques are also showing some results there. With Parkinson in the back one can hope for further refinements of this technology and more studies, whilst at the same time the PD and LC/ME/CFS markers in the eye...
  11. E

    Symptom persistence and biomarkers in post-COVID-19/chronic fatigue syndrome – results from a prospective observational cohort 2023, Scheibenbogen et

    The paper has now been published in the Lancet eClinicalMedicine https://www.sciencedirect.com/science/article/pii/S2589537023003231?dgcid=author https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(23)00323-1/fulltext Summary Background Post-COVID-19 syndrome (PCS) is characterised...
  12. E

    Review Post-COVID Conditions, 2023, Mueller et al

    Given Mayo's rather poor ME/CFS history this seems like a step forward.
  13. E

    SARS-CoV-2-specific T cell therapy for severe COVID-19: a randomized phase 1/2 trial, 2023, Yannaki et al

    SARS-CoV-2-specific T cell therapy for severe COVID-19: a randomized phase 1/2 trial Abstract Despite advances, few therapeutics have shown efficacy in severe coronavirus disease 2019 (COVID-19). In a different context, virus-specific T cells have proven safe and effective. We conducted a...
  14. E

    Muscle strength is reduced for hours after light exercise

    I would suppose that this might be very normal in any disease or circumstance that causes severe degeneration of muscles?
  15. E

    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    I find this an extremely strange paper. My only explanation is that this paper has to be part of some larger grant proposal to study the role of Enteroviruses in ME/CFS or that TEMPI funded a paper specifically on Enteroviruses or wants to focus on this, possibly due to Christoph’s background...
  16. E

    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    Seems to be a general problem in the post-viral illness field. No one wants to do this type of work and funding isn’t the main reason. It seems to be the case for MS as well. One would have thought that someone would have at least tried to replicate and refine Ascherio’s big MS and EBV findings...
  17. E

    The kynurenine pathway relates to post-acute COVID-19 objective cognitive impairment and PASC, 2023, Cysique et al

    The kynurenine pathway relates to post-acute COVID-19 objective cognitive impairment and PASC Abstract Objective To determine the prevalence and natural history of post-acute COVID-19 objective cognitive impairment and function, and their relationship to demographic, clinical factors...
    • EndME
    • Thread
    • brain fog cognitive impairment covid kynurenine long covid
    • Replies: 1
    • Forum: Long Covid research
  18. E

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Does anyone have access to the full paper?
  19. E

    Functional characterisation of the ACE2 orthologues in Drosophila provides insights into the neuromuscular complications of COVID-19, 2023, Cauchi

    Functional characterisation of the ACE2 orthologues in Drosophila provides insights into the neuromuscular complications of COVID-19 Highlights A large percentage of patients with COVID-19 have neuromuscular manifestations. Loss of Drosophila ACE2 orthologues Ance or Ance3 impaired motoric...
  20. E

    Long COVID-19 cardiac complications are associated with autoimmunity to cardiac self-antigens ... cause cardiac dysfunction, 2023, Cremonesi et al

    A Twitter thread by one of the authors
Back
Top Bottom