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  1. LucyLouWho

    Treatment suggestions for Orthostatic Intolerance (POTS or NMH)

    Just curious if anyone has tried the adrenal cocktail for POTS? Trying to remember...tartar sauce, salt, a juice like lemon (they recommend orange-i am allergic to oranges) and water. Tartar sauce is loaded with potassium. It can help the adrenals and then possibly the POTS. I think my...
  2. LucyLouWho

    I was diagnosed with a rare autoimmune disease called "Relapsing Polychondritis"

    I have sjogrens also. I do not have RP and I am sorry you have this diagnosis. I also have a primary immune deficiency-CVID and lymphopenia. I have had so many surgeries, too. Lost an ovary, Fallopian tube, wrist surgery, back surgery in 1995 and (partial disc removal) and thyroid removal...
  3. LucyLouWho

    Pinched Nerve in Neck...help!

    So, I am seeking out an orthopedic surgeon to really check me out as the disc protrusion in my back is causing such pain down my leg and this has been going on for a year. Originally they thought it was an SI joint issue, failing to ever do an MRI. My ortho that I see now did an MRI and both...
  4. LucyLouWho

    Pinched Nerve in Neck...help!

    Uh...I am so sorry. That's awful. I didn't realize that migraines/neck issues could do that.
  5. LucyLouWho

    Pinched Nerve in Neck...help!

    I don't think I mentioned this but last Friday I threw out my back. I can barely function. Then on Monday I had an epidural in my neck. Now I can't sleep on top of it. I am so sick and I can't get my lower back into a better place. My lower back now is the main issue. This is unreal. I...
  6. LucyLouWho

    Pinched Nerve in Neck...help!

    Hey Mermaid, was this for neck or migraines? That is good to hear! I will mention it to my pain doc.
  7. LucyLouWho

    Pinched Nerve in Neck...help!

    My best friend had them for her migraines and they gave them in her neck as well and the botox caused awful freezing up of muscles. She has been in the ER non stop. I am actually worried, really concerned as her current migraine has been over 40 days now and she is a professor. So, I would...
  8. LucyLouWho

    Pinched Nerve in Neck...help!

    Yes, I think so. I think the combination of lack of thyroid, hormonal shifts and lack of sleep and stress makes it so much worse. Ever since I went into meno...I would call it perimeno, but I now go for months with no period, it has gotten much worse. When I was getting my period regularly, I...
  9. LucyLouWho

    Pinched Nerve in Neck...help!

    Hi and thank you. It started in 2015 after I had my wrist operated on. I went to PT then and it did help. It went away or wasn't an issue until last year when I fell in the tub. I fell and actually injured my lower back, but my neck felt it also. I have a herniated disc in my lower back...
  10. LucyLouWho

    Pinched Nerve in Neck...help!

    Has anyone ever had a pinched nerve in your neck where there was abnormal MRI but it wasn't significant? I have a pinched nerve with degeneration of discs but not issue with it causing narrowing in the spinal canal. The ortho doc is saying there should not be need for this much pain. Well...
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