Search results

You just described psychosomatic medicine :laugh:

Christian Zacharias, a German pwME, has published a book titled "Everything is psychosomatic". Because, somehow, this is one of the most controversial things out there, he couldn't find a publisher willing to market it. Shows how insane the situation is, that this issue is systematically...

Weird how refusing to try doesn't produce results.

Academia never really had it. It's just that further in the past they were dealing with the relatively easy hanging fruits. People could just stumble by pure chance onto major discoveries, or manage revolutionary insights with just pen and paper. Especially in the early days a lot of the...

Aside from language, this feels like it's written by a child. The ideas and perspectives are very childish. So very very small. And very marketing-oriented. I guess that's the new way of doing things in evidence-based medicine: do it for a while, then pretend to test it. At this point you'll...

References this study from 2023: Treatment of 95 post-Covid patients with SSRIs. Based on this flimsy reasoning: LMAO at the idea that RCTs rule out placebo effects, when bad methodology and biased questionnaires are basically the noise usually referred as placebo. There are so many bad RCTs...

I have no idea what can be done, not many Greek users here, but a Greek very severe pwME has just been put into forced psychiatric hold by her parents. Katiana's parents don't believe in ME/CFS and she has not found any MD who can help her, so today they signed her off to a psychiatric facility...

I don't really see how we could present this to editors in a way that would make them understand why it even matters. Mostly a bunch of "so what?" reactions. This is why Cochrane and others do this. They know they can do whatever they want to us, since no one cares what happens to us. Maybe the...

It's very good at making an easy-to-understand summary of a long text. And really when you look at the transcript of the intramural study, this is all the takeaways MDs will take from it. It completely ignores everything else and focuses on the old recycled trope, while somehow presenting it as...

Somehow managing to be insulting to both people with ME and people with PTSD. It used to be mostly compared to depression, but that shift has really cemented with Long Covid. So damn insulting to people who live through serious trauma, especially while selling the mantra that "COVID is just a...

My course was too chaotic to have a single point in time at which things began. There are clear downturns, but they had a long tail of slow and fluctuating symptoms that made it hard to function. All of those downturns happened soon after too much exertion in too short a time. But from reading...

Not dualists, though. You're the dualist. The thing y'all saying is just a cold in a population where most had a mild course? Not even bothering trying to make sense.

So if we follow the usual 90% undiagnosed, the real number should be close to 10x?

Well ain't those some frank and honest speak-to-power words.

It can find patterns when they are too complex for humans to find. Machine learning is really perfect for this as it's built out of the same problems: connections and directions in highly multidimensional (as in thousands of dimensions) fields. But there really aren't useful patterns here...

I think this is from the patient-led team that sprung out of the Body politic group that published the first LC paper. It looks excellent and just about confirms what other studies that have tried the same: you can find clusters of symptoms, if you want, but they aren't much useful, as neither...

I still have no idea what people even mean by that. It was disruptive, but to call it traumatizing, for most people it makes a mockery of actual traumatizing events. For some, sure, but the people to whom it was most traumatizing had loved ones who died, and the idea that they would be against...

They're involving Walitt in this :banghead::banghead::banghead:.

Certainly not someone studying this very thing. Of course he's only saying this because this is the line that medicine uses to cover for their denial, but that's still disappointing. We need leaders. We have bureaucrats instead.

The office of the Chief science officer of Canada has published a report on Long Covid: Dealing with the fallout: Post-COVID Condition and its continued impact on individuals and society. Not much to work with here. This is super basic stuff but at least it's not completely wrong. Which is...