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  1. rvallee

    Hypothesis A global neuronal workspace model of functional neurological disorders 2024 Naccache and Munoz-Musat

    I tried to skim this and I just can't make it. It's just self-important rambling.
  2. rvallee

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    What about from people who are medically qualified? Saying the exact same thing? Publishing research saying the exact same thing? Clinically advising the exact same thing? With the same intent and purpose? Officially? With consequences, for insurance and disability? Valid expert opinion in a...
  3. rvallee

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Unfortunately this is by far the biggest problem here: it's not. This is now accepted modern neuroscience and health care. It's 100% pseudoscience, but a huge number of neurologists and other MDs, as well as psychiatrists and psychologists, essentially say the same things with the same intent...
  4. rvallee

    Predictive Processing and the Pathophysiology of Functional Neurological Disorder, 2024, Jungilligens and Perez

    Yeah and I didn't notice but Perez is an author, so basically one of the "big guns" of the ideology. They have a good scam and they're not letting go of it. It's an officially approved and enabled scam, they can simply coast on repeat. There is a common criticism of AI models not having any...
  5. rvallee

    Mindfulness-Based Stress Reduction vs Escitalopram for the Treatment of Adults With Anxiety Disorders A Randomized Clinical Trial, 2024, Mete et al

    Yet another flawed trial comparing something that doesn't work with another thing that doesn't work and concludes that it's just as good. 0=0=it works! All because they're evaluating both so poorly that all it takes is a bit of bias for something that doesn't work to appear to work. Absurd. No...
  6. rvallee

    Mindfulness-Based Stress Reduction vs Escitalopram for the Treatment of Adults With Anxiety Disorders A Randomized Clinical Trial, 2024, Mete et al

    Mindfulness-Based Stress Reduction vs Escitalopram for the Treatment of Adults With Anxiety Disorders A Randomized Clinical Trial https://jamanetwork.com/journals/jamapsychiatry/fullarticle/2798510 Abstract Importance: Anxiety disorders are common, highly distressing, and impairing...
  7. rvallee

    Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul

    From a recent conversation with my GP's clinic, it appears that the diagnosis on my medical record is fibromyalgia. Probably. When I talked with an assessor for disability years ago, they mentioned chronic fatigue. I don't know what's officially coded with the system, it could be neither. Hell...
  8. rvallee

    News from Australia

    There is a severe patient in Australia who appears to be in distress. I don't think I've seen it mentioned yet, and she seems to be getting no help. I'm not sure what can be done here. Anyone has any ideas?
  9. rvallee

    News from PolyBio Research Foundation

    It probably was, but those are probably more direct/less available means, like subscribing to their newsletter, or maybe Facebook or other places. Not many places to get that kind of information. Same with OMF's symposiums, or the United2fight conference. That's what made twitter unique. It...
  10. rvallee

    Scotland: Dr Claire Taylor - ME/CFS and Long Covid

    Join the dots. Unfortunately, the dots are too close to one another and that means that it can't be right. Or something like that. No, it has to be the super convoluted explanation that makes no sense whatsoever. Sometimes it's the dots farthest away from one another that make sense. Clearly...
  11. rvallee

    News from PolyBio Research Foundation

    The downfall of Xitter is probably a big reason. It's often the only place to find out about it these days, and with fewer people to notice them. Although it's good that lots of summaries and videos get posted after, so missing it for a day or two isn't that big a deal. Sometimes I see something...
  12. rvallee

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    People being bedbound for 2.5 years being spun up as feel-good stories, neglecting the huge number of people who do not have a happy ending, has the same feel as US news media reporting positive feel-good stories about children running lemonade stands or selling all their toys to help a parent...
  13. rvallee

    What is the Todd Davenport approach to pacing?

    I found that using a monitor helped me establish the level of activity that I can tolerate, but eventually I got enough information that I don't really need it anymore. I got used to manually check my HR by hand and can estimate it close enough to know if I feel like I've overdone it, making...
  14. rvallee

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    A 2-page summary, gives a good overview of what was discussed: And some selected quotes:
  15. rvallee

    General news about Fabricated and Induced Illness syndrome (FII)

    Continuing the total cover-up of Long Covid, zero mention of what is known to be the main cause of school absence. The fact that it's known, that the questions are asked and have been published publicly, easily available, makes it so disturbing. This is 1984 level of inventing a version of...
  16. rvallee

    Meaningful digital biomarkers derived from wearable sensors to predict daily fatigue in MS patients and healthy controls, 2024, Max Moebus et al

    Predict isn't the right term here. It doesn't predict, it reflects it. Same as the height of a boat relative to the sea bottom doesn't predict the tide, it only matches it. Oh no that's not possible, we were assured by self-rated experts on fatigue that levels of activity and fatigue have...
  17. rvallee

    The outcomes of mental health care for depression over time: A meta-regression analysis of response rates in usual care, 2024, Karyotaki

    This caught my eye: It is very important to examine what the exact reasons are for the stable response rates over time and how this rate can be improved. It makes little sense to conduct hundreds of randomized trials on psychological treatments, when they do not lead to better routine practice...
  18. rvallee

    The outcomes of mental health care for depression over time: A meta-regression analysis of response rates in usual care, 2024, Karyotaki

    The outcomes of mental health care for depression over time: A meta-regression analysis of response rates in usual care https://www.sciencedirect.com/science/article/pii/S0165032724007377 Highlights Response rates in usual mental health care have not improved over time. Only about one in...
  19. rvallee

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    Xitter thread documenting media coverage of the conference:
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