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METHOD A. Mitochondrial gene analysis Hospitalised - but this was in 2020 when maybe everyone who was positive may have been hospitalised B. Relationship between Mitochondrial derived peptides (MDPs) and inflammatory markers Samples taken 4 weeks after infection. 20 Neurological-PASC (10...

University of Southern California

See this thread for the moved discussion on diagnostic tests: Biomarkers for ME/CFS - discussion thread on the next steps for testing biomarkers, and why we need them

The selection criteria is quite unclear. I think the sample is of people who reported having experienced at least one 'potentially traumatic experience'. But I haven't looked closely enough. I intended to, and then thought that maybe the study wasn't worth spending time on. It just all sounds...

PTE = Potentially traumatic experience

It's a nice article. As I was reading about the significant variation in human bodies, I was thinking about the misplaced certainty of the FND proponents when it comes to their diagnostic tests. If nerves can branch off in multiple different ways in different bodies, and it seems that they...

Thanks bobbler, it's probably time we aligned that list with the various threads we have, and checked the links still work. I'll add it to the to do list. If, after checking to be sure that there isn't an existing thread, anyone wants to start a thread for a clinic providing services to people...

Yes. I don't think they are necessarily a waste of time, it's just that they aren't science. People volunteer to tell their stories and are selective about what they say, there isn't a statistically valid result. Papers like this are really reporting, a type of journalism, and, if they are...

I feel a bit hesitant about this campaign against the #EveryBodyMoves idea. Yes, of course there is a big element of inspiration porn and yes, it is likely to make many people with ME/CFS feel sad about what they have lost, what they cannot now do. But, I'm not sure that we should campaign...

When I was talking about 'overall prevalence' I was meaning 'rate per thousand' or percentage. I wasn't suggesting people with ME/CFS diagnoses over the age of 60 should not be included in national totals. It's just that I think diagnosis in the older age groups is even more subject to the...

Thanks for posting @Daisybell. From the article:

Yes. So, until we have a biomarker, I don't think reported prevalence of ME/CFS in age classes over 65 tell us much and are best ignored when trying to work out overall prevalence. New diagnoses in older people are even more subjective and prone to clinician preference than usual.

Huh? I haven't looked beyond the abstract, but perhaps it would have been good to have defined 'symbolic violence' in there somewhere?

I thought it was worth highlighting this recruitment process for a research nurse in The Netherlands ME/CFS Cohort and Biobank consortium (NMCB)

:rofl: I've changed the title to add a couple more sciencey words, hopefully adding a bit more credibility to the term. You should be able to change the title Ravn, (top right, thread tools, edit thread), but very possibly something is not working right. Message me with a new title if you...

Thanks @Ravn, I don't think I've heard of stress granules before. I wondered where you were going with them to start with; they sounded a bit like ear seeds, or small stress balls. There has been some talk of the role of heat shock proteins in ME/CFS, and here is a suggestion that heat shock...

Yes, I think you are right. The Context in the NICE ME/CFS Guidelines isn't too bad to cite in an introduction, for research relevant to England and Wales anyway. At least it's an authoritative source.

From the Daily Mail article: Dr Monro certainly sounds problematic, but the commentary about her could just as easily be said about many doctors promoting psychosomatic beliefs, some of them eminent. In fact, it could just as easily be said about too many doctors with all sorts of beliefs...

On payment, yes, it depends on the study and on the PwME. There's the option of PwME opting not to be paid, or having their payment be donated to a charity. And of course, it's not feasible for every study to pay for PPI. There are lots of different ways to do things. A Masters student could...