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I recall that you have suggested that there is no such thing as hEDS, which did cause some people for whom hEDS is part of their identity some consternation. However, you were not suggesting that those people's symptoms were not real. Those posts were allowed here, despite some vigorous...

Ha. If so, I hope he saw my comment in the chat that Arroll is a major contributor to the RNZCGP's promotion of faith healing equivalents. Probably he'd take it as a compliment. Yes, Warren is so helpful in so many ways, but I think he is still getting some things significantly wrong. There...

I caught the end of a webinar on Long Covid with Michael Baker, Warren Tate, Paula Lorgelly and Jenene Crossan I must have got the time wrong. https://helenclark.foundation/event/webinar-long-covid/ A copy of the webinar will be up on the website tomorrow

Another interview on Nine to Noon on Radio NZ this morning: Are insurers wrongly declining ME/CFS claims? https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018932623/are-insurers-wrongly-declining-me-cfs-claims

I don't think that is the case, that I have not understood that things are complicated. I think a person who currently feels happy with their FND diagnosis can still suffer harm from it. No, I'm not missing that point at all. I am just noting that people feeling comforted by their FND...

A main point of that Barnett, Tyson 2020 paper is to encourage neurologists to clearly diagnose FND and to clearly tell the patient, so that patients don't turn up to appointments with allied health professionals for treatment unaware that that is what the neurologist's conclusion was. The...

Well, naturally, many of us are concerned that people who meet ME/CFS criteria are being diagnosed with FND. Because we know the treatments that they are given with that diagnosis won't help and may harm in a range of ways. So, we are concerned about misdiagnosis and the promotion of treatments...

The 2020 paper that Tyson coauthored definitely talks about treatment, with a clear expectation of therapeutic progress. It also gives the impression that the illness is not poorly understood, and urges clinicians to confidently convey that it is not poorly understood. The paper is linked here:

'The Vicious Cycle' paper clearly shows that Professor Sarah Tyson held full BPS views in 2020 and probably still does. She has seemed to not understand the importance of objective outcomes in determining benefits from rehabilitation efforts. She is training young people in these ideas, so, if...

I don't refuse to believe in the possibility of a category of illness called FND. I do think that careful (and probably often expensive) diagnostic effort would separate more people from that category now, and even more in the future as we learn more. I have not yet seen any credible...

Perhaps that person should read the The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett et al review, to find out what many healthcare professionals will be thinking when the patient mentions their diagnosis? If they are aware of...

Sure, but this paper suggests that most healthcare professionals don't see it like that. The term is so debased, there's so much prejudice, that it probably can't fairly be used if someone means it simply in a 'I can't see any structural change that is causing the dysfunction' sense.

My point was that this is a paper reviewing other papers that interviewed health care professionals. At no point were patients with FND diagnoses directly asked what they want. But, fair enough, the authors do cite some papers with titles that suggest that people with FND were asked about their...

I have made some comments and provide some excerpts from Tyson's 'The vicious cycle...' paper here: The vicious cycle of [FND]s: a synthesis of healthcare professionals’ views on working with patients, 2020, Barnett et al The authors see FNDs as psychogenic, that is, conversion disorder. The...

This is all dyed-in-the wool, BPS play book stuff. We see these points repeatedly in papers as FND proponents wring their hands about how better ways of giving and explaining the diagnosis have to be found. And, that's not surprising as this paper is a review of papers examining health care...

FND is clearly conceptualised as psychogenic. Using metaphors to describe the illness and being confident in the diagnosis are regarded as "Successful techniques for treatment". Unnecessary testing should be avoided, as should referrals There's a clear view presented that FND diagnosis is...

From the introduction: It seems the authors, including Sarah Tyson and the Masters student that she was mentoring, believe that misdiagnosis of FNDs are a rare occurrence and that people should be confident that FNDs can be diagnosed accurately. The authors suggest that clinician uncertainty...

If it was that, that would be ok. But it also calls for this in a situation where actually no one knows enough to provide any guidance. Feelings of uncertainty in the clinician are the main protection a person with disease that can't be cured by happy thoughts has against an inappropriate FND...

A member has reminded us that Professor Sarah Tyson has co-authored publications on FND. The vicious cycle of functional neurological disorders: a synthesis of healthcare professionals’ views on working with patients with functional neurological disorder We have a thread on the first one here...

This post has been copied and following discussion of FND moved from: UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 A member has reminded us that Professor Sarah Tyson has co-authored publications on FND. The vicious cycle of...