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  1. Hutan

    Use of stimulants for ME/CFS

    Adderall, Coffee, Cocaine, and Chronic Fatigue Syndrome: A Troubled Romance A 2021 Healthline article by Kiki Dy seems to come to the same conclusion as we have - stimulants offer short term benefits, with pay back later.
  2. Hutan

    Methylphenidate (Ritalin)

    That wasn't true less than 10 years ago. As I noted above, My son definitely did not/does not have ADHD and was not diagnosed with it. He was diagnosed with CFS. Methylphenidate and melatonin was prescribed at the first consultation. I would like to know if young people with ME/CFS are still...
  3. Hutan

    Does Methylphenidate Reduce the Symptoms of Chronic Fatigue Syndrome?, 2006, Blockmans et al

    Methylphenidate as a treatment for ME/CFS is discussed here: Methylphenidate (Ritalin)
  4. Hutan

    Transcutaneous vagus nerve stimulation attenuates autoantibody-mediated cardiovagal dysfunction & inflammation in a rabbit model of [POTS], 2022, Deng

    I've talked about tragus stimulation elsewhere. The tragus is part of the ear. In humans, it seems it's not really known if the vagus nerve even properly goes to the tragus. It seemed that trans-cutaneous stimulation of the tragus might not even be affecting the vagal nerve. Of course, in...
  5. Hutan

    Vagus Nerve Stimulation

    Transcutaneous vagus nerve stimulation attenuates autoantibody-mediated cardiovagal dysfunction & inflammation in a rabbit model of [POTS], 2022, Deng A paper that claims that vagus nerve stimulation helps POTS. It's a tiny study, with only 5 participants, and the participants are rabbits.
  6. Hutan

    Does PEM contribute to POTS?

    On PEM days, my morning resting (supine) heart rate is higher, and it takes much less activity to make it spike. Just sitting on the sofa can make it go over 120. On PEM days, I generally have POTS - an increase in heart rate of more than 30 bpm when going from lying down to standing. When I...
  7. Hutan

    Salt

    Great find Mij. Wow, yes, it does come as a surprise. I wonder if there is any evidence to support the use of salt as a treatment for other sorts of orthostatic intolerance, or to improve orthostatic intolerance symptoms in ME/CFS. It would be good to know if people with ME/CFS are able to...
  8. Hutan

    Compression Garments

    @ahimsa posted this relevant research Splanchnic Venous Compression Enhances the Effects of ß‐Blockade in the Treatment of Postural Tachycardia Syndrome, 2020, Smith et al
  9. Hutan

    BPS attempts at psychologizing Long Covid

    Alerting members that this thread is now in the 'Psychosomatic News - ME/CFS and Long Covid' subforum.
  10. Hutan

    Long Covid in the media and social media 2022

    Alerting members that this thread is now in the Long Covid news subforum.
  11. Hutan

    Global Prevalence of Post COVID-19 Condition or Long COVID: A Meta-Analysis and Systematic Review, Chen et al, 2022

    Having seen the quality of the studies that probably contributed to this paper, I don't set much store by the reported findings. I can't see the paper itself. I understand why Jonas Kunst, an ME/CFS researcher, might want to leap on this and say "Its high prevalence and debilitating symptoms...
  12. Hutan

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Yes, the lack of progress on the ME/CFS study does seem very odd. The idea that they couldn't recruit 40 people with ME/CFS over those years, especially when those participants would have benefitted personally from the detailed investigation, does not seem credible to me. (I've said here...
  13. Hutan

    Gastrointestinal symptoms and fecal shedding of SARS-CoV-2 RNA suggest prolonged gastrointestinal infection, 2022, Natarajan et al

    It seems highly likely that SARS-CoV-2 does, at least sometimes, infect the gastrointestinal tract: Autopsies of patients with COVID-19 have recovered live virus from intestinal biopsies: The stool sample collection method in this study inactivated the virus. They recommend further studies...
  14. Hutan

    USA: News from Solve ME

    There's a thread about a forthcoming Solve webinar about defence force funding for ME/CFS: USA: Webinar for Researchers “CDMRP for ME/CFS: Navigating the Grant Application Process”, 21st April 2022
  15. Hutan

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    Post by @rvallee about tweets from a journalist commenting on the lack of availability of CDC staff for discussions: Long Covid in the media and social media 2022 There are interesting tweets there in the twitter thread, some suggesting that the CDC may have found itself operating in a very...
  16. Hutan

    Gastrointestinal symptoms and fecal shedding of SARS-CoV-2 RNA suggest prolonged gastrointestinal infection, 2022, Natarajan et al

    This study was mentioned in an article posted about here: Long Covid in the media and social media 2022 https://www.bloomberg.com/news/arti...ing-in-feces-offers-clues-to-long-covid-cause
  17. Hutan

    Gastrointestinal symptoms and fecal shedding of SARS-CoV-2 RNA suggest prolonged gastrointestinal infection, 2022, Natarajan et al

    "Context and Significance Gastrointestinal symptoms and SARS-CoV-2 RNA shedding in feces point to the gastrointestinal tract as a possible site of infection in COVID-19. Researchers from Stanford University measured the dynamics over time of fecal viral material in patients with mild to...
  18. Hutan

    Gastrointestinal symptoms and fecal shedding of SARS-CoV-2 RNA suggest prolonged gastrointestinal infection, 2022, Natarajan et al

    https://www.cell.com/med/fulltext/S2666-6340(22)00167-2 Highlights 1.Approximately half of COVID-19 patients shed fecal RNA in the week after infection 2. 4% patients with COVID-19 shed fecal viral RNA 10 months after diagnosis. 3. Presence of fecal SARS-CoV-2 RNA is associated with...
  19. Hutan

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Long Covid in the media and social media 2022 A video with Avindra Nath speaking. He talks about a trial of treatments for Long Covid, and sounds committed to trying to understand Long Covid.
  20. Hutan

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    That's quite a clever and commendable move, to change the name from British Association for CFS/ME to British Association of Clinicians in ME/CFS. Also very good about the Advisory Groups. I hope some of our British-based members will apply to be part of them.
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