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I just heard on Radio National - Radio New Zealand - this morning, a replay of an interview with one of the members of New Zealand's national rugby team. These players are arguably the highest profile athletes in NZ. The interviewer asked 'so, you must be more worried about Long Covid than...

Clearly, someone who didn't understand how preliminary this work is wrote the headlines. Maybe that someone wasn't an author. But, there should be internal processes that ensure the authors sign off on what is said on their behalf on social media about the paper. And, when the paper itself...

Posts about a new paper from the CLOCK study have been moved here: Developing a model for predicting impairing physical symptoms in children... after SARS-CoV-2 ...: CLoCK Study, 2022, Nugawela, Crawley et al

Further discussion about N-acetyl cysteine has been moved here: N-acetyl cysteine (NAC)

This had me staring at the claim for a while, with my mouth agape. I'm repeating what I said in my post above - it's wrong that researchers would make this claim on the basis of an ability to separate 15 patients from 15 controls using 32 variables cherry-picked from a pool of over 800...

'Neurological manifestations associated with COVID-19' in this study are listed as: encephalopathy encephalitis peripheral nervous system syndrome traverse myelitis "For this study, encephalopathy was defined as diffuse brain dysfunction including decreased level of consciousness, cognitive...

So, not person-centred, personalised medicine that is impossible to study then?

Webinar Dec 2021 How to Approach Long COVID: Research Update and Practical Applications Presented by Professor Trudie Chalder "...We have developed an approach which is based on the idea that after the initial illness has subsided physical and psychological processes contribute to ongoing...

I agree scissors are great, I don't know that brand, but good quality heavy duty scissors that come apart for cleaning are brilliant in the kitchen. I love the Clickclack glass storage containers with silicone lids. They can be heated in an oven; they can be heated in a microwave (and have a...

As strategist says and as SI's example illustrates, I think as people adapt, their internal rating scale of a symptom changes. My good days now would have been a pretty rubbish day health-wise when I was well. I think there has to be some adaptation for mental health - you can't rage against...

Well, that's progress, suggesting people with ongoing symptoms should have neurological investigations. While 'non-reversible neuronal injury' may account for some lingering and even permanent post-infection symptoms, I'm not sure that it explains the fluctuating brain fog of ME/CFS. Perhaps...

Yes. Doing my best to understand how a reasonable person might be able to write or agree with that IQWIG quote: I think it's probably fair to say that if a patient learns to cope with a symptom, that is a useful outcome if that is the best that can be done. So, if patients are reporting that...

The latest update on this University of Alabama at Birmingham study was in Dec 2021. Looks like the end date is still some way off, so they probably are still recruiting. Recruiting: Healthy volunteer OR Clinical diagnosis of Multiple Sclerosis (MS) OR Meets 2016 American College of...

We have a Members Only thread on the topic of benzodiazepines here: Benzodiazepines in ME/CFS (diazepam, temazepam, lorazepam (Ativan))

But, even if we don't care what percentage of people with LC have ME/CFS, and just want to show it is possible for people with LC to meet the criteria for an ME/CFS diagnosis, how do we know that the survey hasn't just attracted people who developed ME/CFS over the past two years from something...

Good to see the update, it's pretty good. It says the information is sourced from AfME. I'm not sure that there is any credible evidence to support those statements. I think there might be a link between the menstrual cycle and migraines, but is there any evidence that PEM is more likely at...

I'm not sure what this survey going to tell us - that some people develop Long Covid after a Covid-19 infection and some of those with Long Covid meet the the criteria for ME/CFS? I think we know that. I mean, by soliciting people online to fill in the survey, we won't know what percentage of...

Interesting that the drug is considered potentially useful for Huntington's and Parkinson's as well. Drugs that are supposed to fix lots of things sometimes are mostly marketing hype. Perhaps in this case, the mechanism for improving cognitive performance actually is the same? I don't know...

Even with all those years and all the separation, there are still some similarities. The scientific name for the deer family is Cervidae, from the latin cervus, meaning deer. Maybe it goes all the way back to the ancestor language of the Indo-European and Uralic languages? I guess deer were...

It's open access, although it took me a little while to find a link to a Journal pre-proof. Some bits that I thought were interesting: So, patients tested did not have the symptoms prior to the Covid-19 infection. They were however selected on the basis of having a confirmed Covid-19...