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Yes, the usual problem in these sorts of studies - the abstract doesn't report the percentages and 95% confidence intervals for children who have suffered sexual abuse or learning difficulties, or set the percentage in the context of comparable populations. There is some research suggesting...

I see that the copy that can be accessed is named 'redacted', and what appears to be the final version is marked 'restricted content' and is unavailable. I therefore don't know if what we can read is how the author wanted her thesis to be. I do have an idea of the determination it would have...

From the 1999 article authored by Leonard Calabrese It's another one of those 'damned if you do and damned if you don't' things. If you are too fatigued to do things, you have learned helplessness. If you try to get investigations and better care, then that is evidence that you have health...

The author clearly means well. Unfortunately, what I have read appears to be full of uncritical acceptance of published papers. It is disturbing to think that the author will go out into the world with their doctorate in Counselling Psychology, believing that they are very well qualified to...

@Medfeb, @Hilda Bastian, @Penelope McMillan, I think it is important the people working on the Cochrane Exercise Therapy Review are aware of the links, if they aren't already.

A good quick read. I didn't notice any stepping on Long Covid or ME/CFS communication land mines - the writer seems to get things. She acknowledges ME/CFS. I thought this following point was important. Because post-Covid-19 ME/CFS seems to predominantly hit people of working age, there's...

The paywall doesn't help us in assessing the text, but we've seen the lack of clarity around what the term FND means used against patients. It's like so many terms in this field - 'biopsychosocial' sounds completely sensible, but it typically is not used in a sensible way. I think the...

This team is very well-regarded - see here Australian ME/CFS neuroimaging project receives $1.2m govt grant and Neuroimaging characteristics of ME/CFS: a systematic review. Shan et al. 2020

The thing is people have different thresholds. Some people can't or at least shouldn't do even one CPET. The CPETs I did with Lyn Hodges were each just 8 minutes of cycling, with some minutes of that very easy cycling. It's not necessarily going to trigger PEM, or at least PEM that lasts more...

I haven't read the paper, but this has the usual problem of a case study (no control, did time heal all wounds?). It also has the problem of a whole lot of interventions being applied at once, so we have no way of knowing if one of the other treatments was the thing that helped. This paper...

An interesting but 'off-topic for this thread' discussion about swollen lymph nodes has been moved to Sore throats swollen glands

There was a study of cortisol levels in hair, possibly more than one study. The advantages of that approach is that it gives you a great time series, the sampling can be done at home without exertion and it gets around issues with the timing of peak cortisol to give an idea of total cortisol...

I think it depends on the person's threshold for PEM; I've exerted myself more strenuously than 8 minutes of cycling on successive days. I think it could be fine ethically if the participants were very well informed. I'd definitely do it if given the opportunity, because I really want to know...

Yes, I want to re-echo that. That old review is causing harm, at a time when Covid-19 is producing lots more people with ME/CFS. Given reputable entities such as NICE do not support exercise as a treatment of ME/CFS, there is no doubt that there is enough uncertainty to justify the review being...

I'd like to see a straightforward 2 day CPET study, with all the details managed really well to produce an unassailable result. I'd like to see the CPETs combined with activity monitoring, so that it's possible to ensure that people have a stable activity level before undergoing the first CPET...

From the Health Quality and Safety Commission, wanting ideas for questions for the National Patient Experience Survey and feedback on the current survey.

Interesting to note this role. It could be worth checking for and contacting such teams associated with the big journals when particularly unfairly prejudiced papers are published.

Another reference in this 2022 paper that I think is worthy of comment: A Case of Sporadic Creutzfeldt-Jakob Disease Presenting as Conversion Disorder, 2017 The clinicians looked at this older woman, divorced, with few friends and yet denying depression, and assumed that she was a prime...

Thanks for your efforts @Medfeb

The videos won't play for me, but it's appalling that the caption of the first one points to the infantile speech of a patient, as if it was a confirmation of FND. I think the names of the authors and Spanish and Slovenian clinics involved are worth recording here, in the hope that people with...